Thanks to everyone involved in this important project. I’m sure they’ve been reading this thread so the arguments will probably come as no...
Yep. It makes me cringe every time I see it spelled out. When people in real life ask me what POTS is, I always just say postural tachycardia...
Because they don't believe that severe ME/CFS can result in gastroparesis. They are taught in medical schools and on the wards by their...
I don’t have any experience of pregnancy but I will say nausea is a major ME/CFS symptom for me triggered by exertion. Very embarrassing in public...
Frontiers type journals are major purveyors of this sort of “research”. I don’t read anything that comes out of such journals because the signal...
They are willing to provide nutritional support for other conditions with unknown cause and widely believed to be "psychological" like anorexia...
Huge if true.
Speaking as someone who has had so-called POTS for 20+ years, it’s important to be cautious with the medical advice out there given out by patient...
No one can articulate it clearly. It usually boils down to there being two broad types of brain rot: focal signs go to neurology and the rest gets...
This is a great question, one that I’ve also grappled with. All of the main psychiatric conditions listed in the DSM (MDD, BPAD, schizophrenia,...
Maybe they ran a more conventional analysis like linear mixed effect model and didn’t get the desired result.
I feel like they are reading this and directing this at us.
Overstating the biological evidence does us more harm than good. If you brought n=17 studies like the Nath one to a UK consultant they would...
This happened to me where ART worsened my muscle deconditioning. However, after just a few weeks of doing my usual small amount of physical...
It's both constant and exacerbated during PEM.
Some years ago I did aggressive rest therapy for a couple of years where I did basically nothing, had no PEM and didn’t even leave the house. It...
Come on man.
I've seen the attitude you refer to and it's very dangerous. You will still have ME/CFS afterwards, only without a house/car.
No resources are better than some resources in this situation IMO. The "long sepsis clinics" would just be handing out the same harmful...
Not surprising. There was a study floating around twitter recently on 20-year follow-up after Long SARS. Out of 50 patients in that study, no one...
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