I know... papis... how do we pronounce that, pa-piss? Pa-pee? I can already imagine the doctors laughing and laughing about the introduction of a...
Our Evolving Understanding of ME/CFS Abstract The potential benefits of the scientific insights gleaned from years of treating ME/CFS for the...
It reminds me of something i read as of late. Right before the turn of the century, there was a major ice storm in Montreal and area. Dozens died...
Quasi-experimental study is a research methodology terminology Here is what wiki says: https://en.wikipedia.org/wiki/Quasi-experiment
In regards to women with Lc being more affected, i hear from LC patients claiming disability getting sent to psychiatrist, who proceed to tell...
@Esther12 the systematic review in question has been prepared by university of Oregon, and usually they extract data from clinical trials- do not...
They were also suggesting that clinical trials would not be open to all PWME, but to a subset, giving an example of early diagnosis, viral onset....
I have watched the whole thing. One if the striking moments was a discussion on clinical trials and both the CDC and NIH said they were quite...
You’d wished that these people had a fit bit or actometer on. Clinical trials must have objective measures of improvements. Saying you are a...
Thank you @Michiel Tack, that was really quick!
Hi guys, i am looking for a quick reference as i am writing a letter to editor. Would anybody know which paper states Long Covid rate was...
@DMissa thank you so much for talking to us, thank you for explaining, thank you for your work. Congratulations on your PhD, and this publication.
I understand the need to make this info accessible to all, but how about answering ME specific problems, related to doctors visits, such as what...
So this came up on my google alert, a CDC toolkit for patients to prepare themselves before, during and after a doctor visit. It leaves me with...
Right, the study is feasible, but more patients risk death as a side effect of not getting the surgery. Will parents be informed of that?
Not sure if this has been posted but this happened today: [MEDIA]
I think the mistake many people make is translating what scientific experiments, at the cellular level, means or implies for their functioning as...
Thank you @Forbin i remember this paper. I wonder where they are at with their current research and whether this recent reporting is announcing...
Not for me. That doesn’t sound pleasant.
I do not believe my physician records anything beyond ‘fatigue’. I would be afraid of what i’d find out if i requested copies. There are a few...
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