Good research takes time. It is so painfully slow for us patients to watch. We are just emerging from the pandemic, where a lot of the in-person...
The current state of ME research, along with the clinical care has been disappointing. I am not sure there is even one clinical trial in the works...
I guess that one could add a layer of sliced strawberries to go with the double cheeseburger with bacon and find the 20$ bank note between the...
They don’t interview patients with stage 4 cancer who claim they have been cured by divine intervention, do they? These patients must have left...
And then the FND diagnosis and similar travesties.
Not a hyperbole at all. if you think about it, a majority of doctors are not aware of what is Me and how to diagnose it properly. Then there is a...
best to rely on @Simon M ’s report. sorry I had to say it.
Here in Canada the focus on anxiety and depression came before addressing physical symptoms, once organ damage was ruled out. So dyspnoea and...
Your first sentence describes objective measurement but either are non-specific to ME or have not been validated and accepted as of yet as being...
IVIg has been used for all kinds of ailments. I would suspect that in a clinical trial setting, unless you have very good reasons to try that, and...
I did not watch the webinar. But I know a thing or 2 about allogenic stem cell infusions from my past professional life. 1- the person receiving...
good.
Agreed Not sure how much it will cost. Is this a money making venture?
HPA axis dysfunction affecting testosterone maybe?
When I was early in my diagnosis journey and search for treatments I came into contact with an internist who asked me whether I was abused as a...
Post moved from duplicate thread To associate dysmenorrhea and endometriosis at the same level as POTs is a new one for me. What about those...
Ooops. Sorry. It’s as if the brain reads ME anyways.
A new title came up on my alert for this paper: A Mixed Methods System for the Assessment of Post Exertional Malaise in Encephalomyelitis/Chronic...
I’d like to know what dr Bateman has to say
@Dolphin It looks like the tweet has been deleted.
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