Found this video (I have not watched it) posted on OMF's youtube channel. "Movie about ME" - Director Chesley Heymsfield shares her story! [MEDIA]
I went to the movie website to learn more. It's a little wonky in places. I had trouble viewing the "about MOVIE" page:...
I noticed that this NASEM workshop is listed in Solve ME's calendar of events:...
Latest email from #MEAction, subject line: "Why We Keep Telling the Story of ME to the Press"...
For anyone who was not able to read this Boston Globe article due to a paywall here's a link that the #MEAction group shared in a recent email:...
From The Guardian: Long Covid can impair quality of life more than advanced cancers, study says...
Merged thread. "Hannah Davis: A 360° on Long Covid" "Our in-depth conversation, updating our recent review paper" By Eric Topol...
Study finds 27% rate of long COVID in infected health workers...
Brilliant!
A thought experiment by Emily Bender. This is a post on Medium, and I wasn't sure the embedded version worked, so I've also included a "code"...
Good example. That term was used in this paper: https://dl.acm.org/doi/pdf/10.1145/3442188.3445922. Here's a statement from those same authors...
I thought this news item about NIH was worth posting: Thousands of early-career NIH researchers forming union for first time Push for better pay...
From The Los Angeles Times: Long COVID takes heavy toll on health even as pandemic fades, study shows...
I finally remembered to post about the new website on mastodon. https://disabled.social/@ahimsa_pdx/110471105334440006 I don't have a lot of...
NIH news release dated May 25: Large study provides scientists with deeper insight into long COVID symptoms...
[Moderators - please move if this goes too much off topic. Thanks!] I'm not trying to pick on Emily Taylor, or disagree with her comment. But...
From the Washington Post: For covid long-haulers, the pandemic is far from over The end of the public health emergency leaves many fearful they...
Adding a link to another article that criticizes this exercise trial: Why is the medical community still ignoring long COVID?...
Can you expand on this? My understanding is that POTS is a syndrome that falls under both of those umbrella terms - dysautonomia and orthostatic...
Merged thread Edit: The story's headline has been changed. The old headline sounded a bit like patients did want help, or perhaps patients didn't...
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