From The Sick Times: Trump commands HHS to terminate advisory committee on Long COVID
Thursday, February 20: Patient-led, community-focused event on Zoom Topic: Shaping Our Experience Through Thoughtful Input 11:30 am - 1:00 pm...
Two new online groups, targeted at specific age groups, hosted by the Massachusetts ME/CFS and FM Association: NEW! Gen Z & Millennial Groups...
Article from The Sick Times: Now offline: Government resources about Long COVID as a disability (headline refers to the US government) Several...
From Solve ME: New Solve-Funded Study Backs Stellate Ganglion Block for Long Covid, ME/CFS The forum thread for this study is here:...
New video (about 8.5 minutes long, includes music): [MEDIA] For a full text description of the visuals in this video see the YouTube summary....
Folks can give feedback to #MEAction using this contact form: https://www.meaction.net/contact-us/
A new project, Share the Love, has been announced for Valentine's Day (Feb. 14): Instructions can be found in this Google doc:...
From Solve ME: New Clinical Trial Will Test How Baricitinib Improves Neurocognitive Function in Patients with Long Covid Edit: Forum thread on...
Tuesday, February 18: Free, professionally-facilitated online support group Topic: When Things Get Tough: Managing Difficult Emotions with...
Article from The Sick Times: Breaking: Vital Long COVID data taken down following Trump order
Hi Dolphin That link didn't work for me at all. I got a message saying "This form is not accepting responses" I did a quick search on the Cure...
I recently found out about this page on the CDC website: ME/CFS Resources for Medical Students I think it's fairly new? The date at the top is...
I also included Other because part of PEM for me is waking up a lot more times during the night. - On a good night I wake up about 4 times. (that...
Recordings for parts two and three of the Severe ME/CFS webinar series are now available on SolveME's youtube channel: Severe ME/CFS Webinar...
New post (January 23) from #MEAction: "The Year Ahead" Some of the topics covered in this article: Ways to get involved with #MEAction...
Note: I have no medical background, these are just some comments from a patient who has orthostatic intolerance. I can't provide the medical...
Huh, I think that's the first time I've seen a headline use the phrase "debilitating chronic syndrome" to refer to ME/CFS. Much better than using...
There's also this website with more info: https://disabilitycovidchronicles.nyu.edu/book/how-to-be-disabled-in-a-pandemic/
Important update: This date for this webinar has been changed to January 21. The dates shown by the website and the registration link have now...
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