Good section about the "all your tests are normal" problem that many of us have run into.
Here is a summary of the CARE for Long Covid Act, from Senator Kaine's website:...
MEAction is asking for folks to decorate pillowcases to be used as part of the Millions Missing 2023 art installation -- rows of cots with...
From Solve M.E. - a call to action for Advocacy Week: "Ask your Members of Congress to support the CARE for Long COVID Act!"...
In counties with more Black doctors, Black people live longer, ‘astonishing’ study finds...
I don't think anyone has posted this article yet. From Nieman Reports (please delete if it's a duplicate). Three Years Later, Covid-19 Is Still a...
Adding a link for the "Examining the Working Definition for Long COVID " website....
From an #MEAction email: Millions Missing 2023: Watch Livestream of Press Conference May 12, 2023 11:00 am to 12:00 pm Pacific Time The email...
Posted a few days ago, part of their campaign for May 12th (World ME Day): Send a press release about World ME Day to your local news outlets...
From a Solve M.E. email - webinar on sleep issues is scheduled for Thursday, April 27 at 11 am Pacific time: Announcement here:...
From a Solve M.E. email: Announcement here: https://solvecfs.org/event/38107/ Register here: (this link includes a time zone conversion tool)...
Article in The Nation (paywalled): The Long Covid Revolution by By Fiona Lowenstein and Ryan Prior...
(Hi @Dolphin - using your previous post as a template to add a post for the April 18 session :)) Free, professionally-facilitated online support...
The cost for this 2-day event is $595. I don't recognize the name of this group but with my bad memory that's not surprising. Anyway, here's the...
MEAction, along with several other patient organizations, have written to the DEA (Drug Enforcement Administration) to oppose a new rule...
Many thanks for doing those transcripts, @RedFox ! :) Bookmarking them for later.
Interesting! This study is about whether a longer tilt table test is needed. But I wonder if these same factors - pressure recovery time (PRT)...
It does sound like you and your daughter need more care hours. It's sad that these assessments are so uneven.
Someone on Mastodon posted a thread talking about their experience adjusting to having a carer come to their house. I thought it might be helpful...
Long COVID: Incidence, Impacts, And Implications https://www.healthaffairs.org/content/forefront/long-covid-incidence-impacts-and-implications (I...
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