It has taken me forever to write this up but I'm finally posting a brief summary of my catheter ablation procedure for SVT which happened on April...
It used to be that Orthostatic Intolerance (OI) was an umbrella term that covered several different diagnoses, including POTS, NMH, and others. So...
I had no OI symptoms before ME/CFS onset. And my OI symptoms were among my very first ME/CFS symptoms. For me, OI symptoms include feeling...
Next up in the Sunday Conversations series: “Improving Pain Care Through Education and Policy” Sunday, June 23 4 p.m. Eastern Time...
Here are a couple of articles about the combination COVID and flu vaccine from Moderna. From The Conversation: Results are looking promising for...
Webinar from Solve M.E. - Covid Vaccinations: Efficacy, Options, and Special Considerations for Chronic Illness Tuesday, July 2 1 PM Pacific / 4...
From the #MEAction website: Questions to Ask Prospective MPs About ME/CFS...
Free Lunch & Learn – Virtual Event https://batemanhornecenter.org/event/lunch-learn-virtual-event-52/ Topic: Body of Water, Performance &...
News from #MEAction, from a post on Bluesky by Jaime Seltzer: (line breaks added) "#MEAction’s narrative activity study with Mayo Clinic opens...
Free online support group from Bateman Horne Center: Friday, June 21 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland...
Free online support group from Bateman Horne Center: Friday, June 7 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland Topic:...
In communities of color, long-covid patients are tired of being sick and neglected Regular link:...
#MEAction Scotland publishes impact statement https://www.meaction.net/2024/05/23/meaction-scotland-publishes-impact-statement/ Direct link to...
When talking with folks in the USA I often mention that the reason I use ME/CFS vs. other alternatives is that this is the term used by the CDC,...
An episode from Ground Truths, a podcast by Eric Topol: Svetlana Blitshteyn: On the Front Line With Long Covid and POTS A pioneer in dysautonomia...
You know, whenever I get that "How would you rate your health?" question it is hard for me to say "poor" even though I'm disabled. Part of it is...
Repeat COVID-19 vaccinations elicit antibodies that neutralize variants, other viruses...
#TeachMETreatME: Celebrating An Impactful Campaign https://www.meaction.net/2024/05/17/teachmetreatme-celebrating-an-impactful-campaign/ Lots...
I'm still planning to come back and post a short report but I've been delayed a bit. I spent all my mental energy posting on Mastodon and Bluesky...
[I think this belongs here - please move if necessary] A Fight About Viruses in the Air Is Finally Over. Now It’s Time for Healthy Venting...
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