There's a short "Teach ME Treat ME" video (1 minute) available on YouTube that you can share on social media. "Years to Diagnosis of ME - video...
I posted a link to this MEAction article in the News from Organizations section but I thought I should crosspost it here. This year's Millions...
#MillionsMissing Week is Here: #TeachMETreatME in Action!...
Next online support group from Bateman Horne Center: Tuesday, May 14 1 PM Mountain Time / 3 PM Eastern Time / 8 PM Great Britain & Ireland...
#MEAction’s Jaime Seltzer Selected for TIME100 Health 2024...
I'm not following most of this in real time but I am taking screen shots which I hope will help!
I tuned in about 15 minutes ago, expecting it to start at about a quarter til the hour, but it's still showing lunch break. The screen says 108...
I'm on the west coast so this NIH symposium starts at 6 AM my time (Pacific time). But I'm going to try to watch this section (starts at 9:45 AM...
My catheter ablation for SVT was yesterday. I almost had to stay overnight but managed to get discharged eventually. Happy to be home, resting...
Yes! I got an autoreply:
Thanks for posting that link! I could not figure out how to write an email with input for the Senate Health, Education, Labor, and Pensions...
I have no idea, and I doubt most of the folks who are making these changes to the Medicare rules have any idea of the complexity of the issues...
Thanks for sharing the link. TL;DR (summary) for folks who need it: The author is diagnosed with “moderate obstructive sleep apnoea” and is...
Sanders Seeks Public Input for Long Covid Moonshot Legislation https://www.commondreams.org/news/long-covid The article is from Common Dreams...
Thanks for all the updates @wigglethemouse ! I got the email from Solve ME yesterday (from their mailing list). Maybe you were one of the first...
Solve ME has created an automated tool (meant for folks in the USA) that will contact your Member of Congress (email/phone/twitter) and ask them...
Email from Solve ME: Solve M.E. Announces Emily Taylor as New President and CEO and Publication of New White Paper More info about the white...
NIH RECOVER Research Review (R3) Seminar Series Next seminar: PASC in Children: State of the Science and Future Directions Tuesday, April 23,...
Note: This event is listed on the Solve ME event calendar with the wrong date! (It shows April 2 which has already passed) But the registration...
I don't know anything about this event other than what's at the link....
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