I think it must have really opened NICE's eyes to what the ME/CFS community have been dealing with all these decades, and what it is like being on...
Have they been published yet?
This is the point. Even now - or maybe especially now - they can only do what they have always done, perpetually complain that their flawed...
An interesting signatory: [ATTACH] How likely are they to appreciate that pwME respond abnormally to exercise?
A compromise was inevitable, and given that, I think what we got is a remarkably good compromise. The sulking and grumblings by the other side are...
https://www.rcplondon.ac.uk/news/medical-leaders-sign-joint-statement-response-nice-guidance-mecfs From ... [ATTACH] And as for "However, we...
On the NICE guideline page, https://www.nice.org.uk/guidance/ng206/chapter/Recommendations ... Why are these two logos displayed at the end:...
I suspect it simply demonstrates SMC's rather parasitic survival strategy ... switching to whichever side it thinks is safer to stick with.
I guess the #1 priority was to the the guideline through, and the RT put them in a position where they had nothing to scientifically substantiate...
That's encouraging. Seems the news outlets are seeing this as a hot story, and clamouring to get in quick.
Do ambulance crews / first responders have their own professional journal that could be encouraged to report on this new guideline? Would so love...
[my bold] This clearly illustrates why the new guideline is so desperately important. They truly do not "get it". They are the greatest risk to...
I gather the embargo on the finally-to-be-published guideline is lifted from a minute after midnight tonight.
Depends how fussy you are ... :)
Who funds this stuff?
Nonetheless a biomarker that distinguished any severity of ME/CFS from other conditions would be a big step forward, and could well pave the way...
Faaaaaaantastic!
Given the round table meeting, and the well understood agreement from that to publish, then I imagine that all we are waiting for now is for NICE...
[ATTACH]
Probably not :). My staying up won't make any difference to the timing, so not going to worry myself.
Separate names with a comma.
