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  1. Nellie
    Post

    Action for ME has joined S4ME

    About ten years ago I sold Christmas cards to raise money for them!
    Post by: Nellie, Apr 7, 2018 in forum: General ME/CFS news
  2. Nellie
    Post

    Forward ME Group – Bodily Stress Syndrome

    Thanks for all you do Suzy.
    Post by: Nellie, Apr 5, 2018 in forum: General ME/CFS news
  3. Nellie
    Post

    How I'm feeling after my MS ‘body reboot’ - BBC Website

    Doesn't Paul Cheyney do something similar in Panamanian and Costa Rican clinics? But I don't remember reading any of the results.
    Post by: Nellie, Apr 3, 2018 in forum: Other health news and research
  4. Nellie
    Post

    Sinus pain - no mucus - and related issues

    :hug:
    Post by: Nellie, Apr 3, 2018 in forum: General and other signs and symptoms
  5. Nellie
    Post

    Nasobiotex L. Sakei Probiotic Powder for sinus microbiome - anyone tried it?

    Welcome to the Forum
    Post by: Nellie, Apr 3, 2018 in forum: Nutrition, food sensitivity, microbiome treatments
  6. Nellie
    Post

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Done
    Post by: Nellie, Mar 30, 2018 in forum: General ME/CFS news
  7. Nellie
    Post

    ICO ruling: QMUL should release copies of COI statements made to the Trial Management Group

    This is not related to the above but maybe of interest - Malcolm Hooper etc. on the Gibson Inquiry with, maybe, interesting quotes from Aylward:...
    Post by: Nellie, Mar 25, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  8. Nellie
    Post

    Dutch Health Council on ME/CFS tomorrow on national news

    @Jonathan Edwards I now have the ear of my MP who went to the recent debate and asked a question. Do you have any thoughts of what I need to ask...
    Post by: Nellie, Mar 19, 2018 in forum: General ME/CFS news
  9. Nellie
    Post

    Action for ME has joined S4ME

    Welcome to the Forum @Arisoned
    Post by: Nellie, Mar 18, 2018 in forum: General ME/CFS news
  10. Nellie
    Post

    BACME Meeting 14-15 March

    "Children cheating on the actometer." Didn't PACE start off using actometers? Did they stop because the adults cheated?
    Post by: Nellie, Mar 16, 2018 in forum: General ME/CFS news
  11. Nellie
    Post

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    @Jan said: 'Is there any chance Holgate may step down @Jonathan Edwards ? Patients have no faith in him, the trust has dissolved over many years...
    Post by: Nellie, Mar 15, 2018 in forum: News from organisations
  12. Nellie
    Post

    PIP Tribunal

    Wonko, This is so awful that I can't think of what to say that could be of comfort. Just on the offchance - I'm wondering if anyone has contact...
    Post by: Nellie, Mar 14, 2018 in forum: Work, Finances and Disability Insurance
  13. Nellie
    Post

    Daily Mirror: "Heartbroken mum suffering a 'living death' that means she can only see her son a few minutes a day"

    Really is heartbreaking.
    Post by: Nellie, Mar 11, 2018 in forum: General ME/CFS news
  14. Nellie
    Post

    Gary Burgess - 'My illness has shown journalism can be a force for good'

    Welcome @Peter
    Post by: Nellie, Mar 9, 2018 in forum: General ME/CFS news
  15. Nellie
    Post

    David Tuller - Trial By Error: News About My Plans

    Excellent news.
    Post by: Nellie, Mar 7, 2018 in forum: General ME/CFS news
  16. Nellie
    Post

    United Kingdom: ME Research Collaborative (MERC) [was CMRC] news

    Post by: Nellie, Mar 6, 2018 in forum: News from organisations
  17. Nellie
    Post

    Interviews on ME on Radio Solent

    Well done @chicaguapa and thank you.
    Post by: Nellie, Mar 4, 2018 in forum: General ME/CFS news
  18. Nellie
    Post

    My ME story on BBC Radio Jersey

    Thanks again Gary, two one hour programmes in one week must be a record. You mentioned B12 injections - I've used very fine needles that are used...
    Post by: Nellie, Mar 4, 2018 in forum: General ME/CFS news
  19. Nellie
    Post

    Sir Vince Cable has signed up to Dr. Myhill’s MAIMES Campaign

    Letter from Charles Shepherd to Vince Cable 2010 http://www.meactionuk.org.uk/MW/2010/hooper-letter-to-cable-re-pace-trial_7oct2010.pdf He may...
    Post by: Nellie, Mar 3, 2018 in forum: General ME/CFS news
  20. Nellie
    Post

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    Spot on @Amw66 she is in a tough position.
    Post by: Nellie, Mar 1, 2018 in forum: General ME/CFS news
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