I was a PhD candidate. I reached the point where talking was very painful due to the cognitive demand, I could not read, and I could not write,...
The opposite in my view. The cognitive dysfunction stops us from discussing it most of the time if I use my own experience. Right now I can only...
It was cognitive dysfunction that ended any chance at a career for me. It is cognitive dysfunction that stops me from advocating, writing articles...
You cannot prepare for a future as a sick patient if you do not understand you might not recover.
There are many studies looking at a large array of things that have had findings, like the metabolomic studies. I think we need studies that...
These days cell line studies from actual patients are a great early alternative. They can also be genetically modified if necessary, to alter...
There may be a range of natural supplements or treatments that might work. All requiring clinical trials of course. Also there are a great many...
I think this is badly needed.
There are hundreds if not thousands of metabolic problems in ME. Its a side that lacks investigation, though we have way too many areas that lack...
Any experienced metabolic researcher.
Tai Chi was one of the things I tried a long time ago, maybe in the 90s, maybe the 80s. It made me worse. I suspect some mild patients might find...
Diaphragmatic breath meditation was what I was doing in the 80s. I found it induced PEM. I had to stop. However I had massive lung capacity back...
:)
In many cases the remaining symptoms after infection are due to the immune system still being active, not so much the pathogen. I can stay sick...
This does need to be researched. I am glad someone seems to be doing that. However we don't know how reliable it is in ME for most patients. Yet....
Objective diagnostic test? Or FND based on dubious diagnostic criteria? I think we know the answer to this. Don't they mean either associations...
The longer I have been sick the stronger the circadian issues have become. Right now I think there are at least seven stages of sleep and...
I am not convinced its optimal to ever give up trying to find an alternative diagnosis. However after five or so years I think it should be...
Could this actually be contributing to the delay? Too much new information?
EBM was a potentially worthy idea. Cochrane made some real progress early on. However how it has evolved, with economic and political and other...
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