So is almost everyone until reality grinds that hope down. Things will improve if we make them improve, but its a long road not a sprint. In many...
Medical politics, not medical science. We still need to advocate for the science.
What exactly does it mean that you have validated a disease state that may or may not exist and for which there is no objective diagnostic test?...
I used to eat ginger a lot, but had side effects as I was eating too much. Doh. I even had friends complain they could smell ginger just from...
Chronic sore throat and thirst are two of my constant physical symptoms, but worse at times. Not sure if in a crash its worse for me. I have lots...
I think most of us do early on. I had a partial mask for a long time, admitting CFS but not saying how bad it was. Something amazing happened...
In my opinion, and based in part on my own observations, we do a lot of pretending about our illness. Society and our own expectations lead many...
Thanks for the clarification.
Illness behaviour is still a technically correct term, referring to changes in behaviour due to illness, as the term suggests. However like many...
I had the experience of my own mother suggesting I might have ME, back in the early 1980s. Based on what I had read in the news media I dismissed...
Yes, these are the hard core dualists, but also dualist deniers. Hypocrisy in a tight package. There MUST be mechanisms, given that most MUS have...
I saw the thread title and started laughing. Literally. Given that ME and long COVID have almost the same symptoms, how is one clearly syndromic...
So far as I am currently aware Bansal retired without publishing or something like that. If I recall correctly this was about too many...
I had about a five year stretch where this happened over and over. They nearly always lasted about six hours for me, but others seem to have...
The whole concept of biomarkers is very confused. Recently (2018) there was an investigation that found various agencies use different definitions...
I suspect, somewhat speculatively, that the underlying problem puts stress on every organ, and then the organ adapts by decreasing function....
This is exactly how I see onset with ME.
The problem with the Dubbo studies seems to be, from my now not so great memory, we cannot be sure any had PEM, or ME. So we cannot be sure if...
Yes, a respiratory virus may push a focus on lung problems, with other problems being discounted. Whatever is the issue with ME inducing viruses...
"Over 60% of respondents said they aren’t getting the treatment they need." I don't think most people are yet aware that the treatments they need...
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