Perhaps the OI/hypertension discussion might benefit from my experience. I am not alone, but I have BOTH hypertension and NMH, neurally mediated...
Once I fully implemented pacing I felt much better at a higher level of disability than when I was working part time or studying at university....
In assessing disability using checklists for other diseases we often fall short. That is, in my opinion, a problem with how disability is...
This might fit the vesicle speculation. What happens to vesicles that are frozen like that? I don't know, but I think we need to know. It may be...
I have been thinking about this a fair bit, but from another angle. I also have type 2 diabetes. If ME involves mitochondrial suppression, and...
Current glycosylation testing is only for glucose, and fizzy drinks often contain a lot of fructose. Fructose is very much more glycating, and...
My suspicion is that we can restore our short term muscle energy store. This means we have enough muscle energy to function, but its gone very fast.
This needs a serious follow-up, especially since problems can be induced in healthy muscle tissue by incubating it with ME blood serum for two...
I have had complete remission of all symptoms for some days, though usually about six hours. I have also had restoration of energy but with other...
That yet another doctor who not only cannot help but still thinks they can. Doctors can support us, but they will not cure us until we have an...
At that time a lot of medicine, and softer science, was about showing they are right, and its up to others to show if they are wrong. It was about...
We do not know what causes ME, we do not have specific mechanisms. What we have is multiple triggers and lots of hypotheses. We know what...
I have been considering that not all cells are affected the same for decades. This should be the default assumption in my opinion. However there...
Placebo is still useful as a control condition in studies. Otherwise, aside from pain, it is often bs as you said.
It definitely can be with minor results. Was it working, was it not? Expectation can lead us to think it was working when it was not. However the...
I tried pycnogenol. At low dose it does nothing. At high dose ... wham, amazing, but only happened once. It was not repeatable.
Totally. If I had been taught pacing at an early stage I would probably still be working and worth millions. Instead of poor. I might have also...
I did this for a while in the 80s. There is still an issue with getting to the range and back again.
That was me in 1993. I started walking and then running again, in a national park behind where I lived. It went OK for a while. Then it didn't. My...
At one point there was a stat often quoted that half of all CFS (don't think it was ME) patients who recovered relapse at some point, sometimes...
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