Yes, I think so too. There is unfairness and prejudice here, but its not the LC patients, its the medical system (in its full context) that is...
PEM or exercise intolerance, which is similar but has different energetics? Most ME patients seem to have difficulty producing power on demand,...
Then, based on published research, it looks like your result is an outlier. I do know that some who probably have ME who were very fit at the...
"The retention of bioenergetic defects in cultured cells indicates that there is a genetic or epigenetic component to the disease." I just wanted...
Going back to the question in the thread title, is exertion the correct focus? I would like to answer this slightly differently than before....
Not that I have seen. Its a verbal narrative. In other words, its a cultural claim not a scientific one. Is it possible that sometimes this...
My comment reflects the notion of a low respiratory reserve. Its not that mild patients do not have energy, its that there is a limit, associated...
Lightning is quiet for now, so here goes. The finding of the "something in the blood" offers an additional angle. Something is suppressing...
I have lamented elsewhere that really really need not just a diagnostic biomarker for ME but also for PEM. Its so easy to get into blurred...
One might even say it was old wine in new recycled bottles? Sorry, couldn't resist. "New" bottles is too polite.
During the PACE trial a patient whose name I no longer recall, and would not say anyway, contacted me. They were doing worse, with lots of...
I am coming to the view that failed choice in outcome measures results in optimization to the wrong things. This happens in research other than...
Actually what you describe IS a placeholder. It "might be" is not a scientific fact. Sure it might, most of these patients probably do have a not...
After lockdown for weeks due to an outbreak from a quarantine bungle (still under investigation I think) our state of Victoria, Australia, only...
Its worse than that for some of us. I literally forget what problems I have until I am having to do something again and have issues. How do...
An update as of a few minutes ago - I have the bad habit of closing my left eye as sight is so poor and its easier to concentrate. I had my left...
Herd immunity can last for years ... to prior strains of the virus. It may or may not offer partial immunity to new strains. Severe morbidity...
a.k.a. satisficing, doing enough so that its minimally acceptable, not so its perfect.
I have been forced into dealing with this for the last 8 years in particular. I find I have prioritized things, and priorities happen first. If I...
I think a major point about ME is that it takes a long time for a patient to figure things out. Its like its an alien experience, and it is alien...
Separate names with a comma.
