Thank you @dave30th for all the great efforts and important work. You’ve done a h... of a job. It is very worrying that it has to be like this....
Great talk. Good she’s quite well after two rough years, at least that’s the impression. But as ME-patients we now a thing or two about mobilizing...
Advocacy is complex, and given the situation, there is really no way of slowing down here or there. But I think Barry makes some important points....
Agree. Where the heck would we be without the enthusiasts? But no wonder people are getting impatient. We’ve heard for years and years expressions...
Sounds like Mayo have institutionalized LP or something similar. What a complete mess. They are putting very bad attitudes on display. The big...
It would be very interesting to do rigorous exercise-tests these in combination with sleep tests. Asking a lot, but.. I find the sleeping part...
Interesting and important. At first, the layman in me really calls for solid distinctions and accuracy. What is GET and what is PACE style GET?...
I guess that exercise tests will provide a lot of knowledge. In theory of PEM,it seems like gold standard, except from patients at risk when...
Ouch, what a read, adding one more one-sided and partial article in defense of PACE and Sharpe. I wonder: Where are the good investigative...
Always a bit sceptic and wish one could shy away from headlines like “its not psychological”, “it’s real” and such. These headlines are poor. Says...
This is one of many examples of what many have experienced, and what I would characterize as the scary part of EBV, - meaning that many top...
Great interview and thanks again for your interest and relentless good work. You give great insight to the challenge, the magnitude, all the...
Yes, important point. Almost every legitimate and sensible concern is labeled in media as patients opposing “all in the mind” phrase. Thats beside...
I have seen the Jamison clips. Isolated these clips mostly is ok and pretty neutral. Thanks for participating. Won’t spend valuable time seeing...
I see your point and agree that there is time that not qualify like a crash. I also use PEM and probably still will. When mentioning PEC, it is as...
It is an interesting remark. PEM is sort of so incorporated, been the argument confronting BPS-stuff, that one actually can forget how it can be...
See your point. I was to categoric in my attempt to say what I think everybody sort of feels, a great imbalance. Won’t say more on that, other...
To long here, but LP is so fascinating because l’ve experienced the madness and the danger of it. I don’t want that to happen to any ME-patient...
Yes, this point is very important. LP is absolutely the total opposite of pacing, ref the brainwashing “STOP”, the harmful PUSH TROUGH to LIVE THE...
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