Basically two answers changed. And these can be very subjective in terms of moving say from "limited a lot" to "limited a little" The SF36...
I can't remember about NICE but most diagnostic criteria also include lists of diseases as exclusions as well as symptoms. I don't know if these...
Interesting statement - basically saying you can't check our work,
I think there is a real issue here in the SF-36 physical function scale. The scale is a fairly random set of questions around physical abilities....
That is quite a shocking comment from their editors. The protocols are not being updated as a priority - if it were a priority then it wouldn't...
I wonder if an alternative tactic for getting Cochrane to take us seriously would be to start reviewing and commenting on other of their dodgy...
It would be interesting to compare the methodology and trial ratings with that of the Cochrane exercise review. It looks like they are rating...
I think the Charities are flagging issues with various material and services provided by clinics. It something Charles Shepard has talked about...
Are they willfully failing to understand their methodological issues - or do they really not get what it takes to do meaningful research?
This is the problem in that we need to build a community of researchers based on those who have skills and interests that could overlap with ME....
I think somewhere I remember a figure of 280,000 being quoted for the UK. I assume based on the 250,000 estimate upped for population change. I...
They have been and I think there needs to be several centres (but a center doesn't need to be in one place). I think we need to look at how we...
One of the current themes in medical research is 'co-production' with people with lived experience. We see that in Decode for example with @Andy...
I think that is the wrong question. But I think if we can do things to educate reviewers and make them aware of the existing literature and the...
I don't have anything particular. My feeling is that the consultation process will be listened to and hence can be an important process and a way...
I see two problems from the research perspective. The first is lack of money (either in terms of ring fencing or in terms of successfully funded...
We could potentially do a collective response and people can do individual ones. I feel the consultation process could be important
The email I got was just stating the embargo was lasting longer than first stated. So informal rather than a formal statement.
Coverage on Times Radio this morning - including an interview with Sean O'Neill Segment starts at 1.38...
I have an embargoed copy as someone who has been involved.
Separate names with a comma.
