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  1. Diluted-biscuit
    Post

    Beware creating a moral panic about antivaxxers Fiona Fox The Times 2019

    The kids not being vaccinated are at risk because of their parents poor decision. There’s also people who cannot have vaccines for genuine medical...
    Post by: Diluted-biscuit, May 31, 2019 in forum: Other health news and research
  2. Diluted-biscuit
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I’m been debating posting this or not as I’ve not wanted to seem ‘hostile’ but I have to ask. You said earlier in this thread that when you are...
    Post by: Diluted-biscuit, May 30, 2019 in forum: ME/CFS research news
  3. Diluted-biscuit
    Post

    Relief - how temporary ?

    I get this as well, I always crash back down again but there’s always that little voice of hope every time I have a few days of feeling not so awful.
    Post by: Diluted-biscuit, May 30, 2019 in forum: Home adaptations, mobility and personal care
  4. Diluted-biscuit
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    Has anyone heard if someone with ME has recovered after some other kind of serious surgery before? I wondered if there was anything about the...
    Post by: Diluted-biscuit, May 27, 2019 in forum: ME/CFS research news
  5. Diluted-biscuit
    Post

    Unable to access Benefits & Work forum

    I can’t see if I can post on b&w at the moment as it’s out of the opening hours but I can sign in and view the forum fine. Do you use twitter or...
    Post by: Diluted-biscuit, May 27, 2019 in forum: Work, Finances and Disability Insurance
  6. Diluted-biscuit
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I don’t think it’s easy to do that at all. Some people will mislead themselves over 2+2=4. *edit* not talking about anyone in particular on this...
    Post by: Diluted-biscuit, May 18, 2019 in forum: ME/CFS research
  7. Diluted-biscuit
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Yes, that was what I was trying to say really. That help with home care could be taken care of with the separate system of PIP.
    Post by: Diluted-biscuit, May 10, 2019 in forum: ME/CFS research
  8. Diluted-biscuit
    Post

    Building an evidence base for management of severe ME (including sleep management)

    Better guidelines with regards to assessing ME/CFS sufferers for PIP would help with this side of things. The current ones are mixed at best and...
    Post by: Diluted-biscuit, May 10, 2019 in forum: ME/CFS research
  9. Diluted-biscuit
    Post

    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I’ve also wondered about this one. I’m always amazed that cognitive activity can seemingly cause pain and aches in my muscles. I’ve always...
    Post by: Diluted-biscuit, May 7, 2019 in forum: Post-Exertional malaise and fatigue
  10. Diluted-biscuit
    Post

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I’m just too cynical after so many false starts over the years. I know one day they will find something but I’m keeping my expectations low for...
    Post by: Diluted-biscuit, Apr 29, 2019 in forum: ME/CFS research
  11. Diluted-biscuit
    Post

    Advice RE claiming UK benefits, paying NI contributions

    I highly doubt any fact sheets about ME will make any difference. They or you would be better off contacting the CAB for advice. Their local MP...
    Post by: Diluted-biscuit, Apr 28, 2019 in forum: Work, Finances and Disability Insurance
  12. Diluted-biscuit
    Post

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    I’d really rather this stuff wasn’t associated with ME advocacy. It’s just way too divisive in my opinion.
    Post by: Diluted-biscuit, Apr 26, 2019 in forum: General ME/CFS news
  13. Diluted-biscuit
    Post

    #MEAction: "Unseen: Black people living with ME"

    Doesn’t seem like it. I think its good to highlight issues if certain ethnicity’s are not being diagnosed (not sure if this is the case or not)....
    Post by: Diluted-biscuit, Apr 25, 2019 in forum: General ME/CFS news
  14. Diluted-biscuit
    Post

    Duvet woman versus action man: the gendered aetiology of Chronic Fatigue Syndrome according to English newspapers, 2019, Tobbell et al

    Certainly helps them to control the outcome. I guess at least they write their bias for everyone to see.
    Post by: Diluted-biscuit, Apr 17, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  15. Diluted-biscuit
    Post

    #ThisIsME UK Campaign - anyone know who they are?

    There’s all kinds of activism.
    Post by: Diluted-biscuit, Apr 14, 2019 in forum: Advocacy Projects and Campaigns
  16. Diluted-biscuit
    Post

    CD24 expression and B cell maturation shows a novel link with energy metabolism: potential implications for patients with ME/CFS, 2018, Mensah et al

    Doesn’t feel like it in mine!
    Post by: Diluted-biscuit, Apr 13, 2019 in forum: ME/CFS research
  17. Diluted-biscuit
    Post

    Noise Insulation

    I don’t have any experience with sound proofing but I do know someone who has a general builder promise to sound proof an extension for an ME...
    Post by: Diluted-biscuit, Apr 12, 2019 in forum: Home adaptations, mobility and personal care
  18. Diluted-biscuit
    Post

    Don't merge the assessments for PIP and ESA - April 2019

    I have mixed feelings on this. They already reassess ESA on the basis of a PIP assessment and visa versa sometimes so this just takes that further...
    Post by: Diluted-biscuit, Apr 11, 2019 in forum: Petitions
  19. Diluted-biscuit
    Post

    Petition, change.org: Define "Melvin Ramsay's Myalgic Encephalomyelitis (M.E.)" as own distinct disease from CFS

    Perfectly put.
    Post by: Diluted-biscuit, Apr 10, 2019 in forum: Petitions
  20. Diluted-biscuit
    Post

    Update from Ron Davis April 2019 Interview with BenH

    I sweat like crazy during the day and night. I’d like to know what data his statement is based on.
    Post by: Diluted-biscuit, Apr 9, 2019 in forum: General ME/CFS news
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