Yep. Yet another one convinced he's found the magic toadstone. They should watch out. The way the world's going, we're probably due a rerun of...
Absolutely agree, but seeing real people describe trying to manage their capacity, and what happens when they fail, probably has more power than...
It's also a significant financial investment. The infrastructure might not cost much, specially if you have a trustee with the skills to do it,...
If they don't allow critical posts on the forum (at least within the usual bounds of moderation), there's no point in setting it up. It'd have a...
This seems to be a very widespread myth. I wonder if we patients haven't helped much by talking about concepts like energy envelope? It's...
I imagine some of them are people who're not in a position to change policy themselves, and would face disciplinary action if they tried to plough...
Can you believe they missed off the last sentence? I'll put it right for them.
It's a good point. I know how you train that professional: you get input from people living with ME/CFS. You tell them to forget everything they...
That's interesting. (And infuriating!) I've never qualified for 100% council tax exemption due to being on income related ESA. I get the single...
Mine's affected more by autism, where I have to consciously remember to change my expression if I don't want to look like a Soviet border guard....
I'm familiar with five very different hospitals, but they all have one thing in common: it's simply not possible for anyone with a significant...
I suspect not, because you'd have to go through the info and read between the lines. Some of them may claim not to, whilst doing it anyway because...
I do too, but they have to understand it has very little to do with measuring or recording. I know there are a few pwME/CFS who use heart rate...
PS: also look at the wheels. As with powerchairs, the smaller the wheels the less comfortable a run it's likely to be outdoors.
That you can get very good ones for a fraction of the new price by buying secondhand? The rollator my mum had was priced at nearly £300 new, but...
To address the second part of @Sasha's original question, I think one of the ways the charities might do better is by running a consultation with...
I was hacked off when I received my care plan some years ago, which was blank apart from my name, address, and date of birth. I refused to sign...
In the early stages, some would probably benefit from help with pacing down. I could have used it when first diagnosed; I'd already been ill for...
:rofl: Nailed it. Nice salary, pension scheme...
According to our local group, a recent attendee reported that our service still runs sessions lasting two and a half hours. Including dance...
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