:( Wish I could say it was a surprise, but it isn't. The full side effects profile of a new med can take years to emerge, and if its action is...
Very much agree, but I also wonder about the issue of timing. Ideally the PPI group should be involved before a grant application is even...
This gets to the heart of it. It would be easy to design a manipulative questionnaire that gives no opportunity to comment on the real questions...
The language issue really needs tackling by charities and advocates. Descriptive phrases like 'complex multi-system disease' are important...
I've genuinely lost count, but I'm pretty sure I haven't reached double figures yet! :laugh:
Almost none, as most of us have only a fraction of the social contact that most people do. We're probably more at risk of getting it than...
It depends what it means, really. OTs do it as part of their work, but it's mostly about maximising movement efficiency by making changes to home...
Britain has that climate most of the time, but we'd probably call about 60% of it the Really, Really Not Hot time of year. :D It is lovely to be...
I'm not fine about it, but there has to be a risk/benefit analysis as well as a response to other people's preferences. The only way I can think...
I can't answer your question, I know nothing about pharmacology... ...but that's where I'd stop reading. Everyone has their own point of view,...
Don't give 'em ideas! :nailbiting:
It's hard to know whether something is happening that shouldn't, or something isn't happening that should. :confused:
My answer nowadays would probably be 'I mask where I might be a risk to vulnerable people, or where others prefer to mask'. It used to be 'I mask...
There have been sleep studies, but I can't recall seeing much comparing it directly with other disorders. There appear to be several distinct...
Maybe not necessarily? A physician who isn't an ME/CFS specialist but is genuinely interested in it could advance their learning a lot by linking...
Yes, that's an interesting one. I've so rarely had difficulty spending my waking hours with my feet on the floor that the issue wouldn't even...
I didn't take it as having been used in a hierarchical sense in the paper. I took it as a useful symptom (from a long list, some of them common in...
Different cohorts in this imaginary study, then? It'd be interesting to know if there are symptoms or experiences reported in ME/CFS that a...
That might be because it's often carried out by GPs, whose watch and wait approach tends to categorise any result not written in large red letters...
There's unlikely to be a better time to study that as right now. There seem to be a lot of people whose experience of long Covid looks broadly...
Separate names with a comma.
