It depends on the car. The front passenger seat in my old van reclined almost fully if you hutched it forward as far as possible, which I...
I don't have any technical knowledge, but I wouldn't do that. Children have to use booster seats because seatbelts can cause horrible abdominal...
I don't know. What I do know is that when your body produces normal levels of thyroid hormones, it doesn't help at all with ME/CFS or PEM....
Wow, that sounds fabulous for cleaning mud off the wheels of powerchairs! I'll have to look for offers on them—£40 is a bit much, but I'd pay the...
A sort of medical Scully Syndrome? https://tvtropes.org/pmwiki/pmwiki.php/Main/ScullySyndrome
Might be a daft question, @bobbler, but have you tried old-school wool blankets instead? I have several very loud ones left over from the 1970s,...
There is, but it's a lot of effort when they've already made their position—and their likely refusal to deviate from it no matter what—quite...
I doubt it. "We write the rules and we decide whether we've upheld them. And we've decided we have." Some of the medieval witch trials had more...
I dunno. However accurate bits of this might be, will it help? Or even be read? Quite a bit of it isn't useful information about how to talk to...
I made a new one specially for them. [ATTACH]
Trouble is, you can guarantee it'll be on the other side of the house! Someone bought me one, but I rarely use it because bending to pick...
Yes, that's a much better way of putting it. I couldn't think of the right word, but I think agitated would better for me. Yup! I shout at...
It might be. I always knew I needed to sit down, the same way I know I need to go to the toilet, but I guess we have to learn what that feeling...
Me neither. The only time I feel weight is with that 'wearing a lead suit' type of fatigue. But it happens just much when sitting or lying down as...
I wish they'd all just stop having pissing contests on Xitter. All we really know is that people who get PEM say they feel more ill, and have...
I don't have any particular needs about duvets, so I just get cheap ones. I like the system where you have two duvets—a 4.5 tog and a 10 tog—and...
When I could still walk round supermarkets, I used to keep a few coins in the pocket of every coat and jacket so I could drop them if I needed to....
I'd say no. After general lack of capacity to do stuff, mentally and physically, inability to walk is the most disabling symptom. If I could...
Maybe ought to add that nothing unexpected seems to happen to my heart rate when I'm having OI symptoms. There isn't an observable difference from...
If I stand on the spot without doing any significant muscle activity, the symptoms of OI start within 30 seconds. I feel an overwhelming need to...
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