I can see it when I click the image (I don't have a Xitter account).
Yeah, I've come across some good schemes, but they work because they're set up for the right groups. Most people with ME/CFS just aren't. Our...
I've emailed to ask outright what the drug is, saying that I couldn't give informed consent unless I knew. If they tell me, I'll ask if I can...
True, but women are also much more likely to be diagnosed with autoimmune diseases, endometriosis and adenomyosis. Well spotted! I'm not sure...
That info sheet's terrible. Nothing about what it is (except that it might interfere with contraception or egg or sperm quality), and nothing...
In any case, weak opioid painkillers would be enough to mask some ME/CFS symptoms quite nicely in someone who hadn't had them before. I know...
I wouldn't want to take a medication without knowing what it is and what the risks are. Especially not alone at home—what if I was allergic to it?
Absolutely. We didn't get ME/CFS by being forced to run about till we were knackered—if that happened, football would be a very different game!
Of course the other group the information could be aimed at is trial participants. Perhaps it's an area for one of the S4ME fact sheets? It might...
I do know, but that doesn't stop me reading decadent. Every time.
Adobe Express has one that's free to use. I haven't tried it, I just saw the blurb about it; I have a paid-for Adobe program, so I get all sorts...
They seem to prescribe horse-tablet sized doses of calcium for older people on thyroxine anyway. I don't know whether it does any good, but it...
Surly there is, though? It's not uncommon in diabetes, and another causal factor is long term vitamin B12 deficiency (that's why I have it). It's...
True, but if it's some sort of compensatory mechanism you'd expect it to vary a lot in people with different activity patterns. If it's found in...
PS: this is one of the Stressless chairs:...
Two suggestions, though I don't know if either are practical without help. First is a secondhand Stressless chair & footrest. I don't like them...
It would tell them that (a) you had PEM and (b) it was triggered recently, by exceeding your limit. That's all that's needed. A score of 2 or 3...
I don't think it's feasible to develop a metric as such, because PEM's just worsened symptoms. You can give a rough assessment of them, though,...
I'd never heard of it before it appeared in the papers, but immediately understood it. But I'm from Yorkshire and we had competitions for keeping...
Nor were mine, at least the ones I could see on my neck! I'd have ignored them if the GP I was seeing about something else hadn't asked to look at...
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