I wonder if there's a useful question about people's access to the internet, and the impact on them of a lack of access? I don't only mean people...
Quite possibly, and very probably in some. But the suggestion was more about gaining hard data about incidence and age at onset from large...
Maybe one way to get started is to run a project where primary care providers are asked to approach patients in the early stages of suspected...
I also had to renew my blue badge whilst I was waiting in that massive queue for a PIP review. The local authority website advised me to ask for...
No. But adding friction might be enough. If you can blame it on the last government and your government's unlikely to be in power for the 10...
Thanks, that really helps!
So does a non-coding gene mean it doesn't affect protein products etc? Don't seem to have the Ladybird Book of Genetics, though I'm pretty sorted...
Maybe more accurate to say pelvis? Mine's at a funny angle because there's a big enough difference in leg length to make me limp. The blokes in...
Yup. I get a payment that, for instance, covers the cost of my powered wheelchairs and vehicles. Even though I'm using the money for its intended...
It's not even doctoral candidates who need to start by consulting with patient communities. It's their supervisors. Otherwise, by the time...
Maybe they don't realise how hard it would be to get agreement on a three-word motto here, let alone the canonical version of a consultation...
Actually, maybe this aspect is easier to explain. Infections aren't always accompanied by obvious symptoms. If a viral infection's enough to...
Maybe so if it's the Sheffield cohort. The group didn't have the funding or staff resources to visit severely affected people at home, so samples...
Welcome to the forum, @PhD Student @Bham This was similar to my response. It's important, because your ask's quite a big one—they always are in...
There might be different conventions across different countries too, which doesn't help!
It's the diagnostic process itself where the comparison with brain fog would fall apart. In the case of me and other family members, it was done...
It's great to see him able to sit up. It may have been more difficult than is apparent from the photo, but I get the impression there were many...
That really is shocking. Autism doesn't resemble brain fog, and no competent diagnostician could confuse them.
That might be possible if PEM were an entity, a measurable thing, but is it? Or is it just a change of symptoms? Yesterday I had a headache all...
One of the groups I attended had that sometimes, but I can understand it. It's not necessarily lack of interest or commitment, people sometimes...
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