I have been thinking about it, but haven't really got there yet. Part of what's making me hesitate is the possibility it could be worth waiting...
Yeah, I think so. I'm in a minority of people who don't really mind it as long as it's used as a medical term. I'd never choose to use it outside...
Watch this video earlier of a guy talking about his experience of long Covid. It's quite emotional in places. It also makes clear that he's being...
And silent, that's something else to take into account. People don't always know they're bleeding internally.
Probably not. You need a lot of information about how individual charities operate to work out whether they're even eligible for funding schemes,...
See also: We might need to get our arses in gear if we want a cat's chance in hell of getting this. Right, how do we let people say what they need...
I'm trying to think about what (if anything) we really know about ME/CFS. The most basic elements. I'm tripping over words, though. One of the...
Interesting thoughts. They could even set up an automated system where people who've been members for six months get an email about an optional...
1. I'm terrible at it. I can't ask people for money, and I'm not sure I want to. 2. See above, and add that I don't know enough people to...
Perhaps because it appears to be distinctive, and most of the other symptoms are common? Some people argue PEM is ME/CFS, but that's another case...
:rofl: So about 41p a patient tops? [ATTACH] They won't all have musculoskeletal problems, but even so...at best you're looking at someone...
Maybe it's worth asking questions of those people, though, to see if there's anything else. I've had lasting spontaneous remissions. They...
Is it useful to think of things it might be? Like the gap, which seems to be necessary for what we call PEM to develop? Or the undetectability...
I think it's pretty common everywhere. Thing is, it's a job. Even people who like their jobs find aspects of them depressing: the bureaucracy,...
Let me play devil's advocate for a minute. What you describe is my experience too, but what if we're wrong? What if it's much more nuanced or...
Sorry, that might have been a bit misleading! I couldn't walk round the shop on my best day, I'd use the powered wheelie. The point is that some...
So we tell it as a story? A sort of witness account, where the judge will stop you if you try offer explanations or motivations, because you're...
We can't really show that. Whilst there's no evidence ME/CFS is psychological in origin, we can't produce convincing evidence that it isn't—and if...
Yeah, I get that. it does have that meaning to me because I have psoriatic arthritis as well. It's not just having a bit more pain—as in...
Are they? I'm guilty of not bothering to read most of this stuff, but is the UK still doing publicly-funded studies on BPS models of ME/CFS? I...
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