Apparently, NCF (Norwegian LC Association) tried to tell the journalist about most of the flaws, including the lies about the effectiveness. It...
I have no idea about the quality of these studies, but a sponsored Norwegian news article mentioned them. They are about patient involvement in...
Why can’t they talk about how the study found that the treatment was ineffective?!?
I can’t get over how small most CFS studies are.. That’s a very firm conclusion. Can they support it?
I feel like I’m going a bit off topic here, even though the questions are relevant for the sample collection process. Maybe we should leave it...
There’s plenty of missinformation online about ME/CFS. And there are many understandable and valid reasons to seek out cures, treatments or...
That really, really depends on the doc that diagnosed you. I know people that had a diagnosis for years before they heard of PEM. But I can’t...
IMO, one issue is the high levels of trust in our society, especially towards public institutions. When you couple that with conflict avoidance,...
Toxic positivity comes to mind. And we’re not used to suffering. As a Norwegian, very few of my friends or family can handle talking about the...
Tuller has writen a lot about it:...
He recommended pacing up at the end if the video. IMO, he got many things right, but missed the target on a few key points. Personality types,...
@Jonathan Edwards I appreciate your patience! If you say that you study mammals, but only study rats, can you extrapolate those findings to...
I just want to be very clear: I am not claiming that indirectness is the main issue with PACE or the Cochrane review. I’m also not claiming that...
I don’t care what the result of my thinking is. I care about understanding the underlying mechanisms. And I currently don’t understand it. I...
FUNCAP might be a proxy here. Although one problem is that people might not know that they are in PEM if it’s a long crash (and they are not...
Here’s another angle that might explain why there’s focus on the diagnostic criteria: If you study a group that may or may not have PEM, then you...
FYI, this phrasing makes it seem like you’re saying that the wider inclusion criteria is acceptable because you like the results and want to apply...
Iirc, the studies that have looked self-reported ME/CFS status in combination with a symptoms survey, about 50 % of the self reported patients do...
I still don’t understand how you can use a CF study to say something in general about ME/CFS unless you’ve 1) proven that you have a...
Just to clarify, this is what I’ve been trying to say. Medfeb said it a lot better. @Jonathan Edwards I don’t know if it’s correct, but it’s my...
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