Wouldn’t this mean that the cognitive behavioural and the neuroscientific models of fatigue have no predictive power? I.e. that the models appear...
This makes no sense at all. When are we supposed to be able to challenge then? Only the authors and editors/peer reviewers have access to the...
The differences I’ve observed between those who can afford to be sick and those who can’t, are staggering. I’ve followed many LC patients that got...
I tried to get to the bottom of their claims.. Your paper says this about clinophilia: In addition, actigraphy showed a tendency towards high...
I’ve observed clinophilia/clinomania once as a part of depression in a friend. The person’s behaviour was very different from any ME/CFS- or...
I briefly discussed this concept with my psychologist (phd in pain and sleep), although we never used the term. She said that the behaviour she...
My (now former) physiotherapist recently used this study as proof that my LC, PEM and ME/CFS was cureable if I was willing to trust him and let...
During my latest encounter with a BPS physiotherapist, he claimed that if you had a long list of symptoms, it was most likely that it was from...
Thank you!
Yeah, it seems like all of the pharma run trials covers many locations. They probably need it to get enough participants.
@Dolphin this might just be me, but underlined text is really difficult to read. Would you be able to change it to something else?
This might be the Dysport Migraine trial: https://www.medstarhealth.org/blog/dysport-migraine-studies Dysport is similar to Botox.
This might be the POTS trial: https://www.medifind.com/articles/clinical-trial/529149000 IgPro20 appears to be a kind of Immunoglobulin, with the...
The ISM & MCAS protocol: https://clinicaltrials.gov/study/NCT04655118
Thanks! I believe I’m through the worst, and it will improve even more once I’m accepted for permanent disability benefits. It will probably take...
That’s all but two of the 20+ medical professionals I’ve dealt with during the last three years.
Very important point. I stopped using Visible because two minutes of screen time was too much. That’s obviously not the case anymore, but I never...
We absolutely should prove harm if we can. My point was that it shouldn’t be necessary to prove harm to stop the use of the treatment because...
I don’t think that’s categorically true. I’m not saying that you believe so either. Optimisation is one of my favourite topics, so I’m very...
No mention of PEM. Some mentions of somatization and allostasis. Mistaking correlation for causation.
Separate names with a comma.
