The issue is how to get that information to them - I haven't seen any individuals share their contact details including patient reps, and the fact...
CBT evidence Null effect: Whitehead L, Campion P. Can general practitioners manage Chronic Fatigue Syndrome? A controlled trial. J Chronic...
Care needs & Dietary Interventions Patterns of food avoidance in chronic fatigue syndrome; is there a case for dietary recommendations?....
Quality of life and pain Neurological Alliance survey 2019- over 300 people with ME/CFS included...
But it clearly excludes commentary without data analysis, for example Geraghty's Types of harm from CBT can't be sent because it doesn't fit...
Monitoring Showing Chalder Fatigue Scale "Fatigue Scale" and all others are inadequate, but not criticizing DPSQ (Leonard Jason's De Paul Symptom...
They are also intentionally excluding criticism articles such as lists of harms, unless these are in survey forms which of course they are not -...
Systematic reviews are allowed, and other comparative studies. The FINE trial's nil outcome can be used. It makes no sense to ask for...
Re: BELIEFS Any interventions that specifically aim to target beliefs about the illness are totally unacceptable and would not be tolerated for...
Common Data Elements it would be a great help for some to go through what's most relevant here...
Significant evidence from WorkWell Foundation and Leonard Jason on many of these
Still nothing public from Byron Hyde?
Yes, I have read her response to that. A part of it may have been the freezing of samples. I'm shocked at how few patients were involved too. I...
So sorry for your loss.
Any response from Hyde yet? I think it would be interesting to here reflections on Hyde's work by those posting who haven't seen it before. The...
She's not pushing a specific "weaker treatment" and has not created some kind of branded treatment like we've seen from Gupta, the Lightning...
Hyde was a researcher too. And yes, you are missing a great deal. Just because most people get shoddy treatment based on 2 symptoms does not mean...
If anyone has a reference for the complaints against Myhill please post - I heard she was the most investigated UK doctor and thought that info...
I don't know about KDM - he was importing medications illegally which is a huge thing - but Myhill - while pretty rebellious in her approach - has...
It's not Hyde's fault or responsibility that a group of patients do this - it seems to be only a minority of his followers that do it. They are...
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