A clear and useful letter. Just a trivial point, typo in above quote, I am assuming ‘psychologist’ should read ‘psychologise’.
Given the risk of a serious adverse response to an individual vaccine event is fairly low, perhaps 217 does not represent a high cumulative risk...
Though in danger of proposing an unfalsifiable argument, but as well as increasing fatigue as the task goes on, participants are learning about...
You will be right. I don’t mind when I can’t remember things but it is a problem when I am convinced I do remember the wrong thing.
Despite Crawley’s long standing PAG that supports her work, at least since 2016 it is getting harder to argue this, given the various patient...
Isn’t this why you are not meant to eat polar bear liver because of the high amounts of vitamin D. Not that I have ever been tempted.
An ethical committee approving this is perhaps unsurprising, but, even though I was aware that Prof Crawley had a long-standing hand-picked PAG,...
Evidence to add to our thread on why GET is bad for people with ME. Perhaps we should be asking Crawley et all to sign our petition on withdrawing...
Such an app may even help some people, though not as intended. Every now and again I come across people with ME on social media who say things...
Does this rewriting of Activity Management protocol over time represent an attempt to escape the NICE rejection of GET? Certainly I can’t see that...
Yes, association is not sufficient to demonstrate either causation or the direction of any causation if it is the case.
What ever triggers immediate fatigue may contribute to subsequent PEM, and indeed this rapid fatiguability may be more noticeable or have more...
Yes, GET by another name: Although this focuses on cognitive activity rather than physical exercise, by introducing fixed increments does it run...
If my memory services me correctly there was a study looking at outcomes for the British ME/CFS clinics at a time when GET/CBT was their standard...
There are situations where unblinded trials with subjective outcomes are the only option, either because of what is being investigated or because...
Even compared to these disappointing time scales the replacement ME/CFS Exercise Review is a disaster, 4 to 5 years in, depending on where you set...
As I see it the issue is not that people with ME do or do not have issues with day one exertion, one would expect this is many conditions, rather...
Like @Creekside I am currently in favour of preprints but open to be being convinced of the opposite if there seem to be good arguments against....
I have been pondering this phrase as it suggests @sarahtyson is at least in part in a world where people with ME have ‘such a bad reputation’....
There is now a change.org petition relating to Millie’s current situation, see...
Separate names with a comma.
