So to purportedly remove their perceived gap, they create a new gap which, for the children with a missed biomedical condition that fall through...
This is an issue I know nothing about, but wonder if this is a situation that aligns to what we argued for in relation to the NICE guidelines...
My joke that we would need to complain that Cochrane’s response to our complaint was in breach of their own complaints procedures was perhaps not...
There is an interesting discussion developing on the comments thread at Hilda Bastian’s blog much of which involves members here...
I suspect the big issue is not timings, rather that any of the complaints/concerns about the 2019 Review were either ignored or responded to with...
When do we start submitting complaints about Cochrane’s Complaints Team’s failure of process?
I thought that was possible, but looking at Google Scholar I can’t see how to do it other than looking at each citation in turn. This could be my...
At least Cochrane are including patients/carers within the concept of ‘consumers’, though their current shenanigans in relation to the flawed CFS...
I had been surprised by the extent and reach of the citations, and this not only illustrates how these ideas have unjustified creep into other...
I am not sure that CFS was ever ‘aetiologically neutral’, despite being presented as such in the 1980s and 1990s. It was used to distance from the...
It feels a life time ago. I had a great sense of achievement getting there, it was the first such event I had been able to get to for a number of...
Thank you for all the hard work still being done, especially in contacting interested patient groups. There must be nearly 100 now supporting our...
When medication has a dramatic effect you can probably rely on unblinded self reporting, the problem is with something that has a slight effect or...
The SMC’s past coverage of ME/CFS, though recently more balanced, for years promoted only researchers with a narrow partisan approach to research...
Thank you @Andy for posting about this. Interesting that Fiona Fox says on the one hand ‘staff are always open to debating our approach’ and...
I agree with @NelliePledge that if an LDN study is done properly, a null result will be useful in stopping the prescription of an ineffective...
My UK debit card usually works for making a donation. I also don’t have a credit card.
Obviously viruses play a significant role in the genesis of ME/CFS, but I am not sure that a dormant virus lurking unseen in the brain or in some...
The problems in this process have been made much worse by failure for the planned wider consultations to emerge so far. My memory is not reliable...
That explains why it always looks wrong when I write down.
Separate names with a comma.
