I seem to be hallucinating, when I was reading up about Dr Gladwell, I thought one of the Bristol NHS websites said he was on the NICE guidelines...
Interesting on the issue of whether the IAG members who have links with named ME/CFS groups are representing organisations or themselves, they are...
Presumably neither Cochrane or the IAG have published such a list, and at present I suspect it is probably better not to speculate at all about...
The risk of categorising PEM under fatigue is that it increases the chance of confusing it with increased fatiguability, that is getting fatigued...
I have not read the full paper, but suspect that @ME/CFS Skeptic is on the right track. Many years ago I was the subject of a research trial...
Thank you yet again to all who have put in the hard work to try to force progress on something Cochrane have been failing to adequately address...
There is the issue of ‘black swans’. For hundreds of years in Europe the definition of ‘swan’ included it being white, until the first [Europeans]...
There is no simple answer until we have a diagnostic biomarker. Under current definitions by symptom a diagnosis of ME is contingent on PEM. I...
A great start @Trish
When we contacted BACKME some six plus weeks ago, they seemed to have already been aware that the IAG planned to make an announcement ‘in a few...
Thank you. So apart from the failure to withdraw the 2019 update, which would anyway have been replaced by now had things gone as planned,...
If I remember correctly Cochrane had promised to move ME/CFS from their mental health team to a more relevant team (sorry I can’t remember the...
Being quicker at making a diagnosis is only of value if those diagnoses are accurate. Given my cynicism over such as FND diagnoses I worry that...
I just checked the UK FOI situation and found: So we could only use this if an organisation such as NICE entered into a relevant contractual...
I had, what I was told, the latest Pfizer booster yesterday. I got it on grounds of age, just scraped it, as I will be 65 next month. My PA got it...
Is Cochrane subject to freedom of information? Would the UK freedom of information laws apply in this situation or the Swedish? Given the latest...
Politeness/formality can be a very English way of showing aggression or trying to assert dominance. Also to address a message to a named person...
I think you are right, but I suspect the wording is deliberately vague in order to give readers the false impression that they have seriously...
It seems to me that Cochrane’s reply, yet again not signed by a named officer, only attempts to address two questions, the first to which they...
The letter says “A randomized controlled study”, however if subjects are preselected it is not randomised unless the control group undergo the...
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