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  1. Jaybee00
    Post

    Spoon theory

    You mean is there an underlying testable hypothesis? Did they previously test a fork theory hypothesis and it wasn’t significant?
    Post by: Jaybee00, Jan 15, 2023 in forum: Monitoring and pacing
  2. Jaybee00
    Post

    Spoon theory

    Merged thread Spoon Theory—what it is and how I use it to manage chronic illness—WAPO https://wapo.st/3CSR3ll
    Post by: Jaybee00, Jan 15, 2023 in forum: Monitoring and pacing
  3. Jaybee00
    Post

    What do people think of SF-36?

    SF questions reviews—my commentary Q1&2 Fine Q3-12 PF Maybe not great Qs for mild/moderate patients Q13-16–Ok but as mentioned above the 4 week...
    Post by: Jaybee00, Jan 15, 2023 in forum: ME/CFS research
  4. Jaybee00
    Post

    What do people think of SF-36?

    For me the ~10 or so physical function (PF) questions are pretty useless because i have no problems climbing a flight of stairs, lifting a bag,...
    Post by: Jaybee00, Jan 15, 2023 in forum: ME/CFS research
  5. Jaybee00
    Thread

    Harriet Hall dies

    posting here because not an MECFS person obit—please move if needed. HH wrote several articles on MECFS....
    Thread by: Jaybee00, Jan 13, 2023, 0 replies, in forum: General ME/CFS news
  6. Jaybee00
    Post

    Experience with LDN? low dose naltrexone

    See comment above from @Helene Abilify at or below 2 mg/day seems to result in a dramatic improvement for many patients, with several returning to...
    Post by: Jaybee00, Jan 10, 2023 in forum: Drug and supplement treatments
  7. Jaybee00
    Post

    Experience with LDN? low dose naltrexone

    if you’re looking at drug repurposing for currently available approved drugs, better candidates would be low doses of the dopamine...
    Post by: Jaybee00, Jan 9, 2023 in forum: Drug and supplement treatments
  8. Jaybee00
    Post

    Chronic Fatigue, Depression and Anxiety Symptoms in Long COVID Are Strongly Predicted by Neuroimmune and Neuro-Oxidative Pathways.., 2022, Maes et al

    Another masterwork from Maes. This makes 85 publications for 2022. Don’t believe me? Check yourself....
    Post by: Jaybee00, Jan 8, 2023 in forum: Long Covid research
  9. Jaybee00
    Post

    Article: We Might Have Long Covid All Wrong (covers FND,ME/CFS,includes Sharpe,Garner, Carson and more).

    Merged thread TNR article—corrections/error letter—everyone can sign [MEDIA]
    Post by: Jaybee00, Jan 6, 2023 in forum: Psychosomatic news - ME/CFS and Long Covid
  10. Jaybee00
    Post

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    Post by: Jaybee00, Jan 6, 2023 in forum: Long Covid research
  11. Jaybee00
    Thread

    A new paradigm is needed to explain long COVID, Saunders et al 2023

    UGH More bogus nonsense. What is needed are treatments, not “New paradigms”....
    Thread by: Jaybee00, Jan 6, 2023, 45 replies, in forum: Long Covid research
  12. Jaybee00
    Post

    Stanford PACS and ME/CFS Clinic--and a big thank you to Sci for ME members

    FWIW—Reviews of B*nilla per se are generally not great to concerning—do a search on PR for specifics.
    Post by: Jaybee00, Jan 5, 2023 in forum: USA clinics and doctors
  13. Jaybee00
    Post

    ‘Entire Body Is Shaking’: Why Americans With Chronic Pain Are Dying, NYT [trigger warning - discusses suicide]

    [MEDIA]
    Post by: Jaybee00, Jan 4, 2023 in forum: Other health news and research
  14. Jaybee00
    Thread

    ‘Entire Body Is Shaking’: Why Americans With Chronic Pain Are Dying, NYT [trigger warning - discusses suicide]

    USA focus. Some interesting comments....
    Thread by: Jaybee00, Jan 4, 2023, 7 replies, in forum: Other health news and research
  15. Jaybee00
    Post

    11 clinical trials that will shape medicine in 2023, 2022, Carrie Arnold

    https://bmjopen.bmj.com/content/bmjopen/11/5/e047993.full.pdf PI here Thomas Foltynie is from UCL. @Jonathan Edwards any chance you know him? If...
    Post by: Jaybee00, Jan 1, 2023 in forum: Other health news and research
  16. Jaybee00
    Post

    USA: The RECOVER Initiative - Long Covid research

    There’s actually about 18 of these videos—I don’t know if you want to highlight these somehow @Trish @Hutan?...
    Post by: Jaybee00, Jan 1, 2023 in forum: Long Covid news
  17. Jaybee00
    Post

    USA: The RECOVER Initiative - Long Covid research

    Merged thread Vascular Pathophysiology of Long Covid—research review [MEDIA]
    Post by: Jaybee00, Dec 31, 2022 in forum: Long Covid news
  18. Jaybee00
    Post

    11 clinical trials that will shape medicine in 2023, 2022, Carrie Arnold

    Thanks for posting this. I had no idea about using exenatide for Parkinson’s—Some speculation on mechanism here...
    Post by: Jaybee00, Dec 30, 2022 in forum: Other health news and research
  19. Jaybee00
    Post

    Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for...cognitive deficits in Long-COVID, 2022, Fesharaki-Zadeh

    Link to published article Clinical experience with the α2A-adrenoceptor agonist, guanfacine, and N-acetylcysteine for the treatment of cognitive...
    Post by: Jaybee00, Dec 30, 2022 in forum: Long Covid research
  20. Jaybee00
    Post

    News from the USA, United States of America

    Merged thread Rep. Jamie Raskin announces he has ‘serious but curable form of cancer’ USA Ugh Jamie Raskin has been a long time supporter of...
    Post by: Jaybee00, Dec 29, 2022 in forum: Regional news
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