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  1. NelliePledge
    Post

    United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

    forum thread here...
    Post by: NelliePledge, Mar 3, 2025 in forum: Regional news
  2. NelliePledge
    Post

    Long COVID has variable incidence and clinical presentations: our 6-country collaborative study, 2025, Szabo et al

    @Wyva in case you didn’t see this post
    Post by: NelliePledge, Feb 28, 2025 in forum: Long Covid research
  3. NelliePledge
    Post

    The Orexin System and Its Impact on the Autonomic Nervous and Cardiometabolic System in Post-Acute Sequelae of COVID-19, 2025, Ruhrländer et al

    Hopefully the reduction in those couple of symptoms continues for her @MEMarge :hug:
    Post by: NelliePledge, Feb 28, 2025 in forum: Long Covid research
  4. NelliePledge
    Post

    Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome, 2024, Walitt et al

    Pulling back the curtains is an insensitive choice of title given this has actually been done to people with very severe ME against their will
    Post by: NelliePledge, Feb 28, 2025 in forum: ME/CFS research
  5. NelliePledge
    Post

    Sore throats swollen glands

    Swollen glands went along with very bad sore throat at the earlier stages. When I was so ill I would be off sick from work ( undiagnosed). Then...
    Post by: NelliePledge, Feb 27, 2025 in forum: General and other signs and symptoms
  6. NelliePledge
    Post

    Sore throats swollen glands

    https://www.s4me.info/threads/sore-throats-swollen-glands.9370/ (Mod note - that is this thread, post made prior to merging)...
    Post by: NelliePledge, Feb 27, 2025 in forum: General and other signs and symptoms
  7. NelliePledge
    Post

    #ThereForME campaign / Building an NHS that’s there for Long Covid and ME

    Sorry I haven’t been able to read through recent comments. If anyone uk or otherwise would like to suggest the top 2 bullet points (max 2...
    Post by: NelliePledge, Feb 25, 2025 in forum: Advocacy Projects and Campaigns
  8. NelliePledge
    Post

    Duvets - what fillings are worth a try, and which brands and retail are good (eg for being able to send back)

    I’m another who has a silk duvet. It’s very light but very warm. I have a flat sheet duvet then a cotton matelasse type bedspread on top in the...
    Post by: NelliePledge, Feb 18, 2025 in forum: Home adaptations, mobility and personal care
  9. NelliePledge
    Post

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    I’m not sure what could be achieved through a PQ. are there equivalent of APPGs in Australia, Norway? Maybe if so they could be asked to join...
    Post by: NelliePledge, Feb 13, 2025 in forum: 2021 Cochrane Exercise Therapy Review
  10. NelliePledge
    Post

    Open TRI-ME: Trimetazidine to treat Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A double-blind, randomised, placebo-controlled efficacy trial

    Mm a bit too Crawley-esque for me
    Post by: NelliePledge, Feb 5, 2025 in forum: Recruitment into current ME/CFS research studies
  11. NelliePledge
    Post

    Video query- Help appreciated

    I’m tagging @Adam pwme as he may be able to advise
    Post by: NelliePledge, Feb 4, 2025 in forum: General Advocacy Discussions
  12. NelliePledge
    Post

    looking for reccommendations: indoor recliner that is ergonomic to support arms and back etc

    I was going to say the same thing about second hand stress less as Kitty. I have a friend who was a landscape gardener whose back is wrecked and...
    Post by: NelliePledge, Feb 2, 2025 in forum: Home adaptations, mobility and personal care
  13. NelliePledge
    Post

    Effectiveness of a personalised self-management intervention for people living with long covid (Listen trial), 2025, Jones et al

    If they wrote that in straightforward language it would be interesting. Would be interesting to read the manual too. They’re trying to make peer...
    Post by: NelliePledge, Feb 2, 2025 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. NelliePledge
    Post

    Understanding Chronic Fatigue Syndrome – Workshop with Dr Bruno Silva [North Staffordshire Combined Healthcare NHS Trust]

    Anyone know if there’s a transcript?
    Post by: NelliePledge, Feb 2, 2025 in forum: UK clinics and doctors
  15. NelliePledge
    Post

    Any glass water bottle recommendations?

    I have 2 75cl Kilner bottles with clip seals that I use to take water upstairs. I can get upstairs ok if restricted to once or maybe twice a day....
    Post by: NelliePledge, Jan 29, 2025 in forum: Home adaptations, mobility and personal care
  16. NelliePledge
    Post

    2025: The 2019/24 Cochrane Larun review Exercise Therapy for CFS - including IAG, campaign, petition, comments and articles

    Nice one @Hutan
    Post by: NelliePledge, Jan 24, 2025 in forum: 2021 Cochrane Exercise Therapy Review
  17. NelliePledge
    Post

    What could it mean biologically that both physical and cognitive exertion can cause PEM?

    I get it from conversations as well
    Post by: NelliePledge, Jan 24, 2025 in forum: Post-Exertional malaise and fatigue
  18. NelliePledge
    Post

    Functional neurological disorder in multiple sclerosis: A prospective study, 2025, Cuoco et al.

    Proper screening yeah right - only the special ones have the knowledge how to tell the difference ;)
    Post by: NelliePledge, Jan 23, 2025 in forum: Other psychosomatic news and research
  19. NelliePledge
    Post

    What could it mean biologically that both physical and cognitive exertion can cause PEM?

    Yes @forestglip sleep is a massive factor for me and I think it needs properly investigating why PEM affects people’s sleep
    Post by: NelliePledge, Jan 23, 2025 in forum: Post-Exertional malaise and fatigue
  20. NelliePledge
    Post

    What could it mean biologically that both physical and cognitive exertion can cause PEM?

    Spot on. To me it is a type of cognitive exertion.
    Post by: NelliePledge, Jan 23, 2025 in forum: Post-Exertional malaise and fatigue
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