I’m just jumping in to this as only just logged on but is is possible to envisage that sensory overload and lack of sleep are forms of involuntary...
Yeah I can’t face reading about another load of rubbish let alone watch videos selling it to me.
Presumably like salicylic covering with the duct tape makes the skin soft and ripping it off helps detach the verrucca.
Wearing a wire
Great idea about the video @Sean
I don’t have much inclination to get into solutions for uk charities its a big topic I don’t have bandwidth for. One positive comment I can make...
Agreed. We’re not at that point yet because the writing group isn’t in place and working on it so jumping the gun slightly but part of the...
Just to be clear I’m posting examples that I think do a fair job on the language and layout, pitching at a good level for understanding and also...
Yeah my symptoms were treated as due to menopause for a year before CFS diagnosis
Yes it could but you have to be sure you’re confident in an organisation to give a legacy.
Here’s what the USA CDC have as their page on ME/CFS basics. Again there are aspects I would do differently in terms of the presentation and the...
Here’s another example of an explanation of ME/CFS this from ME Research UK https://www.meresearch.org.uk/what-is-me/ Again I’m not saying the...
Someone asked what’s different between ME and MS/Parkinsons charity environment apart from the stuff that’s outside their control that come from...
What do CBT approaches do if not tell people how to live their lives
Agreed The talk about services implies they are everywhere which they certainly aren’t and this point is never highlighted. In my view they...
MEA should not be spending money on helping NHS get NICE 21 compliant. And anyway if that means rolling out the Tyson PROM stuff……
Good to see it included. Hopefully being in this context helps people reading the article register ME/CFS as a serious issue.
I’m not aware of 125k I thought it was 250k @Jonathan Edwards
Yes indeed. Mine is currently being changed.
I agree about diagnosis gap. 10 years ago asking if I had cFS was explicitly told “we don’t find that helpful as a diagnosis it’s better to treat...
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