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  1. NelliePledge
    Post

    Best articles on ME history

    Science Politics and ME is a book from about 10 years ago. Elaine Leavitt and Ian Gibson.
    Post by: NelliePledge, Dec 3, 2024 in forum: ME/CFS research
  2. NelliePledge
    Post

    United Kingdom: ME Association governance issues

    He’s addressing people like they’re primary school kids.
    Post by: NelliePledge, Dec 3, 2024 in forum: Organisations relevant to ME/CFS and Long Covid
  3. NelliePledge
    Post

    Open John Hopkins Long Covid Study (Survey; Open Worldwide)

    Wow that is Chalder fatigue scale level useless
    Post by: NelliePledge, Dec 2, 2024 in forum: Recruitment into current ME/CFS research studies
  4. NelliePledge
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Great news @JohnTheJack :thumbup:
    Post by: NelliePledge, Dec 2, 2024 in forum: News from organisations
  5. NelliePledge
    Post

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    I texted my MP about this she says Jo Platt is a couple of offices away from her and she’ll pop in to see her :)
    Post by: NelliePledge, Dec 2, 2024 in forum: News from organisations
  6. NelliePledge
    Post

    'You'll know you're getting better when you start getting colds & flu again' - anyone else come across this?

    I often have to wait for a couple of days when I’m feeling my worst to know if I’ve got a virus or a straightforward exertion triggered PEM...
    Post by: NelliePledge, Nov 30, 2024 in forum: General and other signs and symptoms
  7. NelliePledge
    Post

    Do you get breathless with exertion?

    I got diagnosed with mild asthma this year @Starrynight i have had tightness in my chest since I had Covid with bad sore throat and cough symptoms...
    Post by: NelliePledge, Nov 30, 2024 in forum: General and other signs and symptoms
  8. NelliePledge
    Post

    COFFI - The international collaborative on fatigue following infection

    Nice one @InitialConditions :thumbup:
    Post by: NelliePledge, Nov 28, 2024 in forum: News from organisations
  9. NelliePledge
    Post

    New Data: The Most Promising Treatments for Long COVID

    I was on SSRI for other reasons for the several years I had undiagnosed mild ME if it had any beneficial effect I wouldn’t have got worse and get...
    Post by: NelliePledge, Nov 28, 2024 in forum: Long Covid research
  10. NelliePledge
    Post

    COFFI - The international collaborative on fatigue following infection

    What does your note say. It doesn’t show from the link for me as I’m non Xitter
    Post by: NelliePledge, Nov 28, 2024 in forum: News from organisations
  11. NelliePledge
    Post

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    “Probably”
    Post by: NelliePledge, Nov 28, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. NelliePledge
    Post

    Is there now a pattern over the year of Covid incidence (UK)?

    Summer one possibly due to transmission as more people travel, especially by air, for summer holidays, also take part in large events like music...
    Post by: NelliePledge, Nov 28, 2024 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. NelliePledge
    Post

    Review Interventions for the management of long covid post-covid condition: living systematic review, 2024, Zeraatkar, Flottorp, Garner, Busse+

    Oh aerobic exercise should be intermittent rather than continuous- that’s ok then :banghead:
    Post by: NelliePledge, Nov 28, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  14. NelliePledge
    Post

    Cochrane Canada guidelines for post-COVID19 condition / Long Covid

    Cheers @rvallee
    Post by: NelliePledge, Nov 27, 2024 in forum: Long Covid news
  15. NelliePledge
    Post

    New Data: The Most Promising Treatments for Long COVID

    The ineffective wheel being reinvented then
    Post by: NelliePledge, Nov 27, 2024 in forum: Long Covid research
  16. NelliePledge
    Post

    COFFI - The international collaborative on fatigue following infection

    That slide is a load of tripe - patronising rubbish
    Post by: NelliePledge, Nov 27, 2024 in forum: News from organisations
  17. NelliePledge
    Post

    Have you limited your activity more than you needed to?

    Deliberately went over my limit yesterday as I was visiting my 93 year old relative and had already cancelled at the weekend. I wasn’t good...
    Post by: NelliePledge, Nov 27, 2024 in forum: Monitoring and pacing
  18. NelliePledge
    Post

    Living with ME: Wellcome Collection

    Well done Jeremy Jeffs an excellent exhibition :thumbup:
    Post by: NelliePledge, Nov 27, 2024 in forum: General ME/CFS news
  19. NelliePledge
    Post

    What changes the minds of health professionals who hold a BPS view of ME/CFS?

    I agree those of us who are less vulnerable and can engage healthcare professionals can use our own experience to educate, I had a positive...
    Post by: NelliePledge, Nov 27, 2024 in forum: General ME/CFS discussion
  20. NelliePledge
    Post

    Cochrane Canada guidelines for post-COVID19 condition / Long Covid

    Dear people with Long Covid and Long Covid organisations this draft guideline is exactly why you need to add your support the S4ME petition for...
    Post by: NelliePledge, Nov 27, 2024 in forum: Long Covid news
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