there's a difference between a genetic condition (follows one of several different defined genetic inheritance patterns; note that this assumes...
I emailed mine with the super easy fill-in form. I know it's not as good as calling, but it's something that I could do.
I think it's different by patient whether we seem more susceptible to incidental infections, less susceptible, or just seem to get things but not...
I am not sure that post-polio (or post-SARS or post-whatever-infectious-disease) is a different disease from ME. I am sure that people with...
Many PCPs feel overwhelmed with a complex illness like this and don't know where to begin. Regardless of there not being evidence-based...
It looks like there are various programs for training new researchers, and there's a funding structure (not currently funded) for developing or...
Yes. My C3 and C4 are normal. Those are the only ones that were checked. This was done because I have positive ANA. I do not have chronic...
I understand it’s awkward to ask, but your work is appreciated.
I think these have been posted before but just in case anyone missed them, they’re very helpful in figuring out what’s going on. NIH Obstacles...
Perhaps you might find this of use: [MEDIA]
I thought they were finding that exercise, long a mainstay of MS treatment, wasn’t helpful after all.
A commission on salary tasked with determining the best way of finding cause and treatments. Promising. Also thanks much for digging this up!
Somebody helped me find a baking soda and fluoride toothpaste at Trader Joe’s that’s working out okay. Thanks everyone. Great ideas, and I hope...
Glycerin is tricky. As best I understand it, it’s a fatty acid that could be used to make soap, and could be a byproduct from soap making. It’s an...
While all/most forms of EDS include some amount of hypermobility and risk of subluxation, EDS is a lot more involved than this. It’s important...
I wonder how more of us could get access to a specialist diagnostician. If that many of us have other diagnoses, we should have some way to be...
I would tend to blame the government for both the lack of government funding and the lack of private funding because of the government-sponsored...
I believe it also took some kind of congressional action, but I haven’t yet found the documentation for this.
Kaiser is one of the earliest HMO’s (health maintenance or managed care organizations; I don’t perceive a difference between the terms) and...
That people are having symptoms is not controversial nor unknown. https://www.lung.ca/lung-health/air-quality/indoor-air-quality/scents...
Separate names with a comma.
