The Norwegian patient advocate Sissel Sunde has collected videos from May 12th in a blog post. Several of the videos are in English....
quotes: To Beth Pollack, an ME/CFS expert and research scientist at MIT who studies infection-associated chronic illnesses, ME/CFS is a chronic...
NINDS Director Walter J. Koroshetz on Twitter yesterday: Today is Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) International...
They've written a summary on Facebook: Autotranslated: Today, Geir and Kjartan from Sintef have published the first register data analysis from...
The Austrian Minister of Health also had a video greeting yesterday on Twitter. Auto translation of Tweet: People suffering from #MECFS need our...
Another high profile German politician, Vizepräsidentin des Deutschen Bundestages Katrin Göring-Eckardt (the "speaker" of the German Parliament)...
BBC Chronic fatigue syndrome: Protestors call for specialist ME services Tells the stories of Rosie Pidgeon, Joan McParland and Rebecca Logan....
Thank you so much for translating Lauterbach's message, @tmrw It's great to see a Minister of Health recognising this day and kudos to Germany...
Thought we could have a thread for this day, to share news and stories and campaigns Will start off with a Tweet from the German Federal Ministry...
Trial by Error by David Tuller Interview with Co-Organizator of Next Week's Unite To Fight Long Covid and ME/CFS Conference An interview with...
The article provides several examples of accommodations for workers with chronic illness. Also includes quite a lot about ME. Quote: In January...
YouTuber and behavioural scientist Pete Judo has done a video debunking the PACE trial. It includes clips with David Tuller and walks through the...
NIH News Releases: NIH to open long COVID clinical trials to study sleep disturbances, exercise intolerance, and post exertional malaise quote:...
Never heard of the Free Speech Union. Wikipedia writes: The Free Speech Union (FSU) is a British organisation which advocates freedom of speech....
Other familiar names on the list: Avindra Nath - Demystifying exhaustion Ziyad Al-Aly - Advocating with research Akiko Iwasaki - A better...
Merged thread TIME100 Health - Jaime Seltzer - Postviral patient advocate Jamie Seltzer is among the hundred most influential people in health...
I see praising comments from other members of the Oslo chronic fatigue Consortium. Maria Pedersen: - What a lecture! Professor Garner show the...
A bit more detailed summary at the end of the report: Call to action: even in the darkness, some priorities are clear While there are...
This is a report published by Economist Impact on the scale and scope of Long Covid. Several experts have contributed, including Dr Charles...
Helse i Hardanger has now closed down and is about to resurface as an online offer called "Safe choice clinic" treating complex illnesses, women's...
Separate names with a comma.
