Sorry if someone else has mentioned this but didn't he also literally tell someone (can't remember who), that he thought PACE was shit before he...
I am a really big fan of this podcast but I went into the Long COVID episode with some trepidation, however the Erin's did a great job. I listened...
All I can offer is my experience rather than advice but about a year ago I was gifted a secondhand 1-2 person Instant Air Fryer and it is...
This is very frustrating as I am not that far away, relatively speaking, but it's far enough there's no way I could get there. I worry that these...
Snap @Trish I had set aside this afternoon to finally get it done and was exasperated by the difficulty in finding the full documents I needed to...
You have summed up my experience too, I've had the pay version for a couple of months and whilst it is a lot for me to spend on my budget I have...
They want to hear from patients who have recovered? I recovered after a 3 year bout of mild/moderate M.E., by resting as necessary and not...
@Kiwipom I can't offer any big brain knowledge but can offer experience of taking low dose beta-blockers. I was initially on 10mg of propranolol...
Just watched the film and fully agree with everything you said.
I got bought this washable electric blanket as a birthday present and it's been wonderful. Very quick to heat up and comfortable to use. It's...
This is very similar to my experience with the illness too.
Because of my veterinary training these severe GI cases always make me think of Grass Sickness/Equine Dysautonomia and wonder if there is any...
That's a great idea, I'll do that too. Thanks.
I have now had mixed results from the app, the pace score often says I'm having a better day than I am. But it's in beta and the devs say they are...
I've been using the app for a week or so, (the first 4 days readings calibrate it to you), and it has accurately picked up a crash I'm having from...
I've signed up to the app today, initially it looks promising, a fairly gentle tracking system and HRV measurement. I really hope it is as useful...
I had the Pfizer bivalent vaccine in the UK, (West Yorkshire), 4 days ago. It's the first Pfizer one I've had out of 4, (2 X Astra-Zeneca and 1 X...
This is very interesting in that she is directly contradicting the BPS explanation of Long COVID in her thread, not something she's ever done with...
I took pyridostigmine starting at a low dose, eventually titrating up to 90mg tid. It had no discernible effect on my POTS or energy levels. I...
I was wondering if it meets the standard of libel, but like you said, it would require NICE to pursue it...
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