Copied from the link: Post Covid Network Nederland and the Radboud Center for Philosophy and Society are hosting a workshop on Post-COVID ethics....
Discussed on this thread, I assume it's the same version 'Pacing for people with M.E.' Action for ME booklet - revised and updated January 2020.
I started reading the article but found the advertisements so objectionable that I decided not to read on. (objectifying semi naked women). I hate...
I don't want to derail either, so I'll just say I think there are likely to be different categories of material published by the forum, which can...
Has this got any better now Esther Crawley seems to have vanished and her last 2 big studies, MAGENTA and FITNET have reported in publications to...
I think one of the differences in terms of amounts raised by the charities is that 'the public' understands that Parkinsons Disease and MS are...
Wow, thank you! I am a bit obsessed with getting PEM defined separately from all the other forms of symptoms during and after exertion. The...
A trial of a psychological therapy for children or adults that is based on telling then to ignore their symptoms, or that their wrong thinking is...
I agree it's unhelpful to use confusing language. I was using the term used by the person I was writing to. I think symptom guided pacing might be...
My point is those who do manage to increase activity levels it's likely that improvement came first, then enabled them to do more.
I'm sure you do need a referral. I don't know whether it can be from a GP or has to be from a specialist.
I am very concerned that some ME/CFS clinicians, clinics and charities are recommending various versions of pacing up, and claiming it's NICE...
There's a big difference between the MEA and S4ME in this regard. We are just providing an online space for people interested in ME/CFS to discuss...
This review article might be useful, Biopsychosocial risk factors of persistent fatigue after acute infection: A systematic review to inform...
Those clinical professionals who change their minds about BPS based only on their own experience can be unreliable allies, not just a certain Mr...
This thread might be a useful source of publications. Simon Wessely Research & Related Quotes particularly posts 3 and 4 with quotes and...
We should also be aware that this discussion has only been running for a couple of days. There may be other forum members who would like to make...
It's great to see so much enthusiasm for this idea, and I don't want to discourage anyone, but before anyone races ahead with organisation and...
I think that is easily covered by saying someone who had PEM but now doesn't but still has some symptoms has ME/CFS that is in partial remission....
Right now in the UK asking, however nicely, for any special provision in hospital is a non starter. They are overflowing with acute infections on...
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