I think we need the initial couple of weeks forum wide discussion, even if it does slow things down. I could, for example, pick my favourite...
Only if they are done one at a time. We could run 2 or 3 in parallel with different writing groups. I don't think we should rush it.
We've already done that in one of our letters. They took no notice.
I agree that at some stage in each document we will need a small group to go to a private space to organise and polish a final version. I think...
The look good, but give a very brief overview and don't cover everything on the list @Jonathan Edwards just posted.
That seems like an even bigger task, as most charities have a lot of resources accumulated over the years. We have reviewed some documents...
This looks important:
I think we should go for quality rather than quantity. Focus on central issues such as defining PEM including differentiating it from other forms...
I disagree. We're trying to get away from diagnostic criteria such as Fukuda and Oxford that don't require PEM.
That was the plan, but it was always within strict paramaters directed by Cochrane. The IAG was to advise the review writing group and give...
Perhaps a useful starting point would be to ask members to put forward existing resources that they think are particularly accurate and helpful....
We also have the read only Library subforum. It's not had any work done on it for a few years, so needs a clear out and update, but could easily...
Crossposted with Hutan. I think the think tank idea is an idealised version of what some of us hoped S4ME could provide. We hoped to provide a...
Given that important documents like minutes of AGMs and the associated voting documents sent out to members are and probably were 10 years ago...
I wonder whether pwME finding oral rehydration salts useful could be related to low blood volume which I think some research has found.
I was curious about the need for glucose in oral rehydration therapy. Here's what Wikipedia says about the need for glucose to accompany the salt....
Since in my letter I made a series of suggestions for action, rather than asking questions, I don't expect a quick response to my letter. I await...
An admin person has acknowledged my letter that she's passed to the trustees. For her full response see this post:...
Having failed to reach a couple of the trustees directly, I sent my letter to the admin email and asked for it to be sent on. I have received this...
They probably do. I think I recall the have jointly funded some research.
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