When I had mild ME/CFS I didn't consider myself disabled. [SPOILER] Even now I much prefer saying I have a disabling illness. Of course I am...
Ah yes I see what you mean. I assume it's referring to irritable bowel syndrome and attributing it to psychological factors, so yes, FND.
disorders of gut–brain interaction (DGBI), Defined at the start of the abstract.
The quote needs to be seen in context on the Abilify thread: https://www.s4me.info/threads/aripiprazole-abilify.16972/page-8#post-305117
I think the idea of a huge placebo effect comes from the rituximab trial, where some of the placebo group recovered, and some quack therapies like...
Thank you, Jonathan Edwards, your rapid response is excellent. I bet Cochrane will ignore it. I hope others put additional pressure on them to...
There is also the complication in interpreting data from an app like visible because pwME fill in their daily symptoms and severity, without...
Have you been able to identify where the pressure was coming from? Was it just Larun and her boss at that stage, or had the Wessely, White,...
I can see usefulness for severity scales as a quick way of conveying to a clinician how disabled you are, and as a way of tracking major changes...
My point was more that by only raising Hilda's tragedy as a reason for delay, without mentioning that it in fact didn't delay the project and it...
Yes please, though I think the major reason given for the delay was the big reorganisation Cochrane was forced to make by cuts in funding. I don't...
I quoted the bit about the earlier attempt to block the project in this post:...
I think it's a pretty good article in BMJ. The bit at the end that quotes our petition update at least raises the issue of influence:
That's quite a long and detailed report mainly focused on research funding. The section on what is already known about ME/CFS biology exaggerates...
Unfortunately the link only take me to the paywalled version, and I can't access the pdf. I hope someone with access will do an accessible archive...
I have made a thread that I've been updating of all the S4ME weekly news items on the review since 2019. Cochrane review of exercise therapy for...
This is a copy of the letter we sent to Cochrane detailing harms evidence....
I don't have the energy to dig out answers on the talkpage and her latest blog. I have asked about both of these on the talkpage. My memory is...
What a ridiculous questionnaire. What do you do if you like a mix of predictability and surprises? And what things are they meaning -...
I doubt I'll finish reading the paper after I came across this in the introductory section: To talk of the need for controllability and...
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