Maat quoted this bit: I responded: It confused me. I've just checked and can see why. The quote was incomplete. It should have read: So it...
I've done the poll. I ticked tired but wired (among other things) but it's not before bed, it's when I try to settle down to sleep and keeps me...
To clarify, I knew because Hilda put it in one of her published updates that there had been a complaint that wanted the new review process stopped...
I wonder whether there is more correspondence now about the republishing as a 2024 review, which presumably Larun had to agree to, as lead author.
I completely agree with that.
The team writing the Larun review are mostly based in Norway. I think we have discussed before whether they are subect to Norwegian FOI. I've...
It's not just about the UK. The Australian new guideline process is happening and they have some Cochrane insiders fighting to retain GET,...
You're right of course, but maybe you'd be surprised at how easy it is to make people feel pressured. Even just discussion of fundraising on a...
It's time Cochrane was shut down.
I don't think we can make assumptions about what anyone else can do. Lives are complicated. Some can, some can't, and none should be pressured...
I missed that bit. I must read it again more carefully. I wish she'd name them. Well, they clearly succeeded in stopping the project in the end.
The trouble for me with showers is not so much the sitting under the warm water, it's all the undressing, hair washing, drying, dressing that...
Yes, you're right, that is a big difference, though in the UK if you have savings you have to pay for that round the clock care, whichever illness...
Not if the rehabilitation industry keeps it's stranglehold on LC and ME/CFS.
I don't think we can generalise. People in the later stages of PD and MS can need 24 hour care, and people with mild ME/CFS are likely to manage...
Thanks Hutan, that's excellent. I wish letters or articles like that could be publicised widely. I don't mean the bit about me, I mean the whole...
'The metasynthesis findings align with previous research'. Of course they do, they are based on previous research. What am I missing here?
One thing that's glaringly obvious but neither Cochrane nor Hilda are wiliing to say is that there is clearly behind the scenes influence going on...
Dream on. It's never going to happen unless a billionaire with good scientific sense gets ME/CFS.
The medical system everywhere seems to be set up with doctors doing the diagnosing and prescribing treatments when there are known and established...
Separate names with a comma.
