I agree questionnaires designed to elicit data on the listed psychological and behavioural characteristics of a child are totally inappropriate...
They're in the Long Covid news subforum: Long Covid in the media and social media 2022 Long Covid in the media and social media 2023 news10.com...
So as not to divert this thread, I've responded in a spoiler. [SPOILER]
@MelbME. I share Hutan's serious concerns about using psychobehavioural questionnaires on children with ME/CFS and their families. If my child had...
An important question. This reissuing a 5 year old review as if it were a new version (which is itself a minor revision of an older review)...
I don't think I've come across anyone else who describes PEM as you do. Of course I respect your diagnosis and description of your symptoms, I...
Threads here: Protocol for a scoping review of how people with ME/CFS use the internet (2024) Shortland et al. Lots of concerns expressed in the...
Hi, welcome to the forum. Can you please give us more information on who is supervising this project and what their and your interest is in...
Sonya has made it clear to us that if someone wants to contribute to review of AfME materials, the best option is to put themselves forward to be...
That's why I suggested joining the forum before submitting their essay for publication. I think we have been quite helpful to students who ask...
Perhaps you might want to wait for the committee to get the project for producing S4ME resources launched, which is imminent, before suggesting...
Perhaps students in this situation could be encouraged to share their learning process and review writing process here, so we can give feedback...
There's also a problem of local and national groups 'going rogue'. My local group which I haven't been involved with for years, used to employ a...
I think we need to avoid confusing two issues. Yes, it's accurate to say pwME experience brain fog. But no, that doesn't mean the cause of that...
Oh dear, I do hope it turns out not to be BPS, it's concerning that they won't reveal to you want the recommendations are yet. Well done for...
@Oni, this post from @obeat on another thread may be helpful for you. It seems very sensible to have a list of your specific needs in such brief...
I don't think the focus in this article is on the unhelpful beliefs aspect of PACE and other trials. I thought they were focusing on the fact that...
I find it refreshingly readable. I didn't notice the grammar.
There weren't any healthy controls in PACE. It was a trial of CBT, GET and Adaptive Pacing. The control group was people with only standard...
Me too. Members might not believe this, given how much I post, but I quite often delete my long incoherent rambles without posting them.
Separate names with a comma.