I don't fundraise from family and friends because I think it's up to them what they donate to. I feel bad enough even mentioning my own symptoms...
I'm getting increasingly confused by this discussion. I thought PEM by definition referred to the experienced phenomenon of (usually delayed)...
As you would expect, those researchers who join us whose papers are heavily criticised react badly. I think anyone whose paper is published can do...
I see no point in trying to engage with bad researchers and clinicians on social media of the brief and transient variety like Facebook and...
Another important avenue we probably don't use enough is emailing researchers directly, either to point them to the discussion here, or to invite...
I think a fact sheet about PEM needs a way to capture the full range of people's experiences of PEM in ME/CFS, and not assume one sort of disease...
I think they're getting around it by funding BPS studies for MUS, FND, persistent physical symptoms etc, and including ME/CFS. And of course there...
I strongly dislike the term flare for PEM/crash. I can't quite explain why. Maybe because to me it implies a particular symptom such as pain...
Sigh. I'm pleased for Miranda that her health has improved, and that she is able to enjoy walking in nature. I just wish she understood that not...
Thanks, @AliceLily, I think rolling PEM and the blurred line between fatiguability and PEM is important to be included in descriptions of PEM.
I take Charles Shepherd's comment as a genuine expression of appreciation of good things Neil Riley has done in the past. What I find difficult...
12) It turns out that there were more than 100 applications to this call and the 4 that received funding had a near perfect score of 14.5 out of...
Oh dear. Show what a wonderful understanding doctor you are who would never gaslight patients, unlike your ignorant colleagues, then throw us...
Well said Peter. I wish Cochrane would be open about their reasons for their about face and republication of the Larun review. Who persuaded...
Given that forum threads are open to all members, I welcome people from all nations giving their perspective. It can contribute usefully to the...
I'm not sure what you mean by us focusing on UK based solutions, @Sasha. What are you envisaging?
It looks to me like they are saying they intend to spend the bulk of their reserves on projects with local health boards on developing their...
I guess it means they know they have made a mess of their governance and Articles, and are putting a positive spin on needing to get an expert in...
The term pacing is fraught with unspoken assumptions on both its meaning and therapists unfounded confidence that: a) they know better than...
Thread here: Antihistamines improve cardiovascular manifestations and other symptoms of long-COVID attributed to mast cell activation, 2023,...
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