Interesting piece. I couldn't find those quotes, though there were related comments in NICE like: What about this claim?: There were people...
The ones at the top of the political pile still hold a lot of sway. The recent 'medical leaders' response to NICE shows that they're not that...
Regardless of whatever ideals you think should prevent this being the case, I think it's pretty clear that in the reality we face patients sending...
Terence Stephenson is the new head of the HRA and is doing the clock long covid study with Trudie Chalder and Esther Crawley....
New CIA report: https://www.nytimes.com/2022/01/20/us/politics/havana-syndrome-cia-report.html To me this sounds more likely that the idea that...
Hi @Anne Kielland . Thank you for posting here and offering to answer questions. That's very good of you. I'm only an English speaker so am...
Here's an archive of the web-page I think I'd linked to:...
They listed it under 'Other study outcomes': They say: "At T0 and T1, data on physical activity level and sleep are also gathered by using an...
Pretty OT, but last year FOM gave an award to Emma Giblin for her (unpublished) CFS work [MEDIA]...
I remembered one of the authors there, David Scales, had written this piece citing Tuller:...
What are you hoping to achieve with this correspondence?
Lots of patients with all sorts of symptoms dislike the label 'chronic fatigue syndrome' being applied to them. I don't think that need be any...
I don't wear a watch because it's too much trouble - I might be unusually lazy.
At the same time, asking participants to wear actometers for at least six months (you need at least two time points) is much more of a burden. I...
I feel as if it gives useful information about that point of time. That they're only collecting it right after the intervention, before patients...
They also say: Though it seems that these are only measured at baseline and immediately after treatment.
Looks like some more slides on twitter here: [MEDIA]
Sorry, that was just my poor copy\paste. The full name, along with everyone's affiliations is at the link.
I was also thinking about those complaining about how many people on the ME/CFS committee had some personal connection to ME/CFS, (though it was...
Guideline committee: https://www.nice.org.uk/guidance/gid-cgwave0725/documents/committee-member-list-2 Just posted as there were some familiar...
Separate names with a comma.
