There was this from a few years ago: https://www.thetimes.co.uk/article/findings-of-5m-me-chronic-fatigue-study-worthless-89z8x0xzr
I think it did - difficult to fully explain how they've misleadingly simplified things in an article if you only have half a paragraph!
Thanks Robert - I'd just posted about the little quote you'd commented on as being problematic. You got into the Times faster than I managed to...
While their heart seems in the right place with this, I do worry that the narrative presented is simplified in some unhelpful and misleading ways...
I think that they had to provide the response from the Royal College of Paediatrics and Child Health. The trouble is that it seems that the Times...
re deconditioning, there's this old thread:...
Different people have different limits. 5km is not a lot of walking for a healthy person.
That was the plan at the start of the trial. By the time the protocol was published they'd dropped actometers as an outcome measure, and they...
That author sounds pretty out there. He lists his affiliation as the "Standards Australia committee", but all the references to that I've found...
This is what he says on PACE:
That's quite a divide.
It looks like that banner is above all their reviews, eg: https://www.cochrane.org/CD011776/NEUROMUSC_managing-symptoms-motor-neuron-disease
Thank you for that. That's really bleak. Things seems so creepy in Norway - best wishes to all the patients there. I wish there was something we...
What would a Berkley website know about that?
Yes, there were some examples of absurdly unreasonable patients confidently making ridiculous arguments (though it was about 10 of them), but I...
So they support giving funding for Live Landmark (someone who has been selling expensive LP courses as effective treatments for a decade) to...
That piece seems to present ME/CFS patients in an unfairly bad light [edit - I guess that it partly does depend on your reading of it though -...
That seemed odd to me too. How and why would a patient 'activist' hack into his e-mail to send those messages?
Do you have any record of what they said to you?
I have to admit that I probably am misunderstand your point here. I certainly think it would be fair to criticise the researchers who kept running...
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