I think that in order to try to protect patients we should be criticising researchers making misleading claims, and we need to do so in a very...
But the assumptions that lead to them claiming CBT/GET are effective are different to the assumptions of the underlying models. Back in 2010 I...
That's not a good reason for criticising research like PACE though, particularly when so little is known about the cause of ME/CFS. If that is why...
Actually, the Times one was the best of them and probably shouldn't have been mentioned alongside the others... though still terrible:...
Would be interesting to have a copy of them as an example, but it might be that no-one has them. The Kelland pieces, the Guardian piece, one in...
Best wishes to Mady Hornig. Even assuming she now recovers quickly I'm sure it has been an unpleasant time.
Good work - thanks to all involved with this.
Does anyone have a copy of the Wyller piece? I couldn't see it, but am stuck speaking English only.
So they selected a subgroup of ME/CFS patients on the basis of their tendency to answer questionnaires more negatively, and found that they tended...
I'd seen other people say that in this series they thought he was trying to address some of the stigma around ME. I've not watched the series or...
Thanks Joan. re this bit: Do you know how good the science underpinning claims about central sensitisation really is? I'm concerned by some of...
I wouldn't assume that just publishing a statistical analysis plan with more information means that there were protocol deviations. It could just...
What changes from the protocol were there? The primary outcome looks the same as the trial registration but that was all I checked.
It depends what is meant by 'BPS people'. If there were decent BPS researchers who had taken the time to really think about the research, and had...
I wonder who will attend the conference?
The involvement of people like Helland and Strand seems like a consistently bad thing for patients. They seems pretty committed to not thinking...
More rambling that ignores the specific problems with the research being criticised, this time from Svein Stølen:...
Being as cynical as possible: With examples of post-viral fatigue it seems that most go on to eventually recover, while some do not. A...
Linking of CFS to Mogellons is likely to be bad for us. I doubt any good will come of this.
https://www.abc.net.au/news/2020-05-19/covid-fatigue-one-of-worst-symptons-patients-say/12252602
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