Well, that was as expected – one-sided and totally missing the point.
Thanks for writing to them, @SallyC :)
Correct, @Andy From my own perspective, the cortisol and the saline IV allowed me to get through the treatment and travel better than without,...
Wow! Out of the blue! At least for me:D :thumbup:
Once I'm up for it and have secured a card I'll set it up! Just got hit over the head with a benefit related obligatory medical appointment after...
They were all given cortisone. Unlikely that it affected outcomes as it’s out of the body quickly.
You can skip around in the live feed as well, as long as it’s still going.
@Andy he just presented an overview of the centers and other research efforts in the US, as well as outlining all the information gaps in ME...
Interesting. As a child I had a very bad ear infection and spent two weeks pressing a pillow to my ear with my shoulder. For two weeks after, I...
I think something like 99% of Norwegians speak English, so not sure there's any reason to, but it could be something like PACE-studien: "noe...
One of the most irritating things about some doctors is how they refuse to understand you if you don’t use the correct medical terms for your...
I’m going to send Nina a thank you card! Let me know if anyone would like to sign it.
I don’t think I’m actually dehydrated, but I feel thirsty a lot especially late at night. I have low sodium and potassium, so I supplement. To...
Maybe this would be better off as a separate thread? Easier for people to pick up on :) A good start would probably be to first pick an area of...
A trick I learned in school that can be very helpful now with ME is to start off with something along the lines of “What I’m thinking is that...”...
In the doc following the rtx trial (III) on Norwegian TV2 this spring, they followed patients and researchers during the trial and up the...
It’s run by the same woman who did this great interview this spring:
Wouldn't S4ME members count as references? :angel: This is the closest I've come to a professional network in a while, anyway. And it's certainly...
My first thought was to ask the guy who made the documentary about the trial at Haukeland. He even started a fundraiser effort for ME research, he...
I figured. Didn't have the capacity to set it up :)
Separate names with a comma.
