Me too.
I haven't read it, but from what I can tell from various FB groups many Norwegian PwME think very highly of it. I didn't buy it for the same...
Kavlifondet has decided to keep supporting ME-research at Haukeland, with an additional 4.72 mNOK, around $590k. KAVLIFONDET GIR 4,7 MILLIONER...
@arewenearlythereyet makes complete sense. That’s it exactly. Good pacing won’t save you from PEM, but you will avoid the big, really horrible...
Exactly. 10 days after moving, PEM hit today after carefully avoiding as much as I can but unable to avoid overextending just a little bit every...
I’m pretty sure I signed it properly, but I guess I could just do it again to be sure as they will probably filter out any duplicates :) ETA:...
2999 signatures. How do you check the list of names? Want to double check that I did it right.
:grumpy::sick::yuck:
https://edinburghkiltwalk2018.everydayhero.com/uk/CairnforMEAction All funds raised through the kiltwalk will be matched 140%, so could be a good...
I love 99% invisible. Design and architecture fun facts, like how curb cuts came into existence or why pools are shaped the way they are. 20...
Congratulations, @Tom Kindlon :) You may not be able to go to many meetings, but your persistence and dedication on Twitter and elsewhere amazes...
I just filled it out. The neurologist I was sent to for a second opinion this spring, after prescribing migraine meds to try against headache...
My POTS always gets worse after long periods of being bedbound, but my ME symptoms are usually reduced by the same.
@LucyLouWho how are you doing? Any progress?
Yes. This was my point, happily someone had the energy to actually write it out! :)
I think we just didn't really know it would hurt us long term. If you do too much you get tired, then you rest or take it easy and you're fine....
Very intriguing. No one in my family have any autoimmune or other diseases that tend to pop up in the families of PwME, however my maternal...
I have at times used a mask from 3M like Wonko, which resembles half a gas mask, for dust and winter smog when I had asthma and lived in another...
How about including the link to the pages on PACE in the new book Psychology in Crisis? Sums it up neatly from a methodological perspective....
In addition to, or rather than, a sore throat during PEM I always feel like I’m about to have an ear infection. I had a really bad one when I...
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