See @Forbin s post #28 - I don't think she meant it literally :) we still have the probability of predisposing factors and/or some sort of double...
25 or so dogs dead so far, and only a few days from first sign of symptoms til death. Difficult to distinguish from symptoms that are normal...
I thought her point was that whatever it is that triggers ME it is very “clever” in that it makes us very ill but leaves us looking healthy most...
Still nothing?
cyclo paper has finally been submitted, great news.
This members only thread will probably solve it for you;)
Probably!
When I’m feeling worse I tend to move more too. Partially because I crave distraction from feeling horrible and partially from being wired.
And, kronisk utmattelsessyndrom (aka chronic fatigue syndrome) is quite a mouthful. No one has ever used KUS, and CFS doesn’t correspond directly...
I think my story is a pretty common one. I first got sick at 19 but it took 10 years for it to become so serious I was diagnosed with ME. So...
Big parts of my family have signed up for this reason. Firstly, bigger numbers mean more power, but it’s also a very effective way to contribute...
Correct. Membership is around $40/year, and the government matches that with around $55 per member if I remember correctly.
I think it’s only 1 month without Prime, but I’ve had several 1 month trials at separate times and come away with a free book every time. Once...
How does that fit with the fact that a lot of women develop autoimmune disease and ME from pregnancy/childbirth? Also, haven’t women always had...
Others probably know more than me about this, but Katharina Lien did (possibly still ongoing) her PhD on ME and has been involved for several...
I think the use of ‘invisible’ is all in the context. It’s one of the points where we can band together with other groups for broader advocacy...
@Wonko makes a great point. It was a long time ago, but there was one period where I would get these severe hypoglycemic episodes. From your...
I don't know Marky, just wanted to say that it sounds horrible. I really hope you find some answers.
Sounds familiar! About two days in I will start planning my gradual return to work and fitness, should it miraculously last. Last year I cleaned...
Even the patients doing it privately had to have a formal diagnosis after the CCC. We were even reevaluated for other dxs before being offered the...
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