Worth noting for any sort of speculation of why it might not apply to severe people, that the difference really isn’t clear cut, it looks like the...
I’ve heard of some that dismiss many things as “stress” or “psychosomatic”. But that doesn’t change that cancer patients are some of the most well...
Grateful for the study. But damn, I really don’t think we should be defining PEM as Fatigue, nor saying fatigue is equivalent to a disabling...
It’s a shame this is the case for nearly every charity — except the 25% one.
It makes sense to seperate into subgroups and prioritise the more disabling ones. It also makes sense to study strict definitions and see if...
Same. It feels good to have someone who understands. Especially the PEM from sensory inputs part.
Any word for the double reverse ferret? À la Garner? Believes ME is total BS -> Gets long COVID apologises and acts like he now completely...
I have that too. Like a sort of if I keep on pushing it I can kind of ignore my symptoms, my body seems to pump adrenaline and I do okay. But it’s...
Maybe see thread: PEM-like descriptions and accounts in non-ME illnesses
As far as we know, yes. It follows a specific pattern that doesn’t seem to be commonly present in any other illness. Though, of course, there are...
The “software” problem basis of FND is more a “meme” / “trope” than something that has much evidence behind it. In fact even the most zealous...
Yep, there’s plenty of groups with BPS moderators who silence any sort of biomedical perspectives. Ie. r/cfsme and r/mecfs on reddit.
On this thread, we kind of touched on the large intersection between the “social democrat” center left ideologies and BPS views....
Please delete if this has already been posted, but looks like a german news source has made a long article about the Cochrane situation....
Results might just be noise from more severe infections -> post-ICU syndrome
And PEM is a pretty vague concept! Sometimes when a crash lasts really long, and it turns into a permanent severity worsening, it’s hard to tell...
It’s similar in Swiss culture… Always “Do you feel any better”. People don’t have a cultural conception of permanent illness. Illness has to be...
That’s probably one of the better scenarios with RFK. My bet is that it’s either all word no action, or he’ll use long COVID as a way to advance...
Thanks! I’ll believe RFK’s words when I see them!
I have a friend who was diagnosed with FND which ended up being MS. They said discussing the whole thing with someone skeptical of the concept...
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