During PEM I get especially super thirsty. But also more hungry. Unsure if the extra hunger is due to not sleeping as much because the extra...
Maybe they've already contacted them? or perhaps they left twitter? Idk
I really hope they find help. The french system is terrible for pwME.
I thought you meant it’s horrifying in the sense it was taken over by psychobehaviouralists. Just to clarify for people who don’t feel like...
I honestly know nothing about electronics so Amp Frequency Volt make no sense to me. I was sick with my COVID infection that eventually got me...
This is the kind of thing I use. It’s a godsend. Personally the first two days it kind of hurt then I got used to them.
I’m not sure if the blinding was necessarily well done. Because when my VNS is on I can feel a slight electrical tingling on my ear. I’m willing...
Yeah. All sounds are terrible. To me a hum is less bad than acute blips, so if i could I wouldn’t mind having whitenoise just for caregiver visits...
I actually have one of those neck pillows which works pretty well. But I can’t sleep long on the same side or my side gets super sore since I’m...
https://bsky.app/profile/thesicktimes.bsky.social/post/3ljdbs7mnys2b
This is like telling cancer patients there’s nothing that indicates they will die. Obviously it won’t last forever for everybody, and cancer...
Yes. It’s really powerful to simply acknowledge. And the contrast shows the damage that the erasure or ignorance of very severe can do, in that...
Bookmarked. Thanks
do you know of earplugs that do any better? because they are far better than foam but that’s all i’ve tried earplug wise. I’m very willing to buy...
I’ve found it fine on the side. I sleep on my side and I use these ones to sleep. If it feels weird I can usually rotate them and they feel okay....
Not sure exacly. I don’t have them by me now. I think it was this decently expensive (couple hundred?) one from a brand called Sennheiser. I...
To be completely honest that was what I used to use a while back but it was far from enough. I found replacing them with work-duty earmuffs (the...
moved posts I’m in the same situation. How do you manage irritation? I tend to do a complex system of cycling earmuffs and earplugs but I’m open...
When I joined an LDN facebook group, before I had joined this forum and learnt much about ME, I was suprised to see the list of conditions they...
Yes it actually scared me it was a Pacing Up type paper at first.
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